Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research‐Clinical Divide

Journal of Law, Medicine and Ethics 43 (3):486-501 (2015)
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Both bioethics and law have governed human genomics by distinguishing research from clinical practice. Yet the rise of translational genomics now makes this traditional dichotomy inadequate. This paper pioneers a new approach to the ethics of translational genomics. It maps the full range of ethical approaches needed, proposes a “layered” approach to determining the ethics framework for projects combining research and clinical care, and clarifies the key role that return of results can play in advancing translation



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Susan Wolf
University of North Carolina, Chapel Hill