Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research‐Clinical Divide

Journal of Law, Medicine and Ethics 43 (3):486-501 (2015)
  Copy   BIBTEX

Abstract

Both bioethics and law have governed human genomics by distinguishing research from clinical practice. Yet the rise of translational genomics now makes this traditional dichotomy inadequate. This paper pioneers a new approach to the ethics of translational genomics. It maps the full range of ethical approaches needed, proposes a “layered” approach to determining the ethics framework for projects combining research and clinical care, and clarifies the key role that return of results can play in advancing translation

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 76,346

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

The Diverse Ethics of Translational Research.Neema Sofaer & Nir Eyal - 2010 - American Journal of Bioethics 10 (8):19-30.
Return of Results: Towards a Lexicon?Bartha Maria Knoppers & Amy Dam - 2011 - Journal of Law, Medicine and Ethics 39 (4):577-582.
Translational ethics? The theory-practice gap in medical ethics.A. Cribb - 2010 - Journal of Medical Ethics 36 (4):207-210.
Understanding Incidental Findings in the Context of Genetics and Genomics.Mildred K. Cho - 2008 - Journal of Law, Medicine and Ethics 36 (2):280-285.
Clinical Research Consultation: A Casebook.Marion Danis (ed.) - 2012 - Oxford University Press.
The Return of Results of Deceased Research Participants.Anne Marie Tassé - 2011 - Journal of Law, Medicine and Ethics 39 (4):621-630.
Ethical Considerations Translational Genomics: The Case of Emerging Cancer Therapeutics.Alan C. Warner - 2012 - Ethics in Biology, Engineering and Medicine 3 (1-3):115-121.

Analytics

Added to PP
2015-10-20

Downloads
8 (#988,777)

6 months
1 (#450,993)

Historical graph of downloads
How can I increase my downloads?

Author's Profile

Susan Wolf
University of North Carolina, Chapel Hill