Organ procurement organizations internet enrollment for organ donation: Abandoning informed consent [Book Review]
BMC Medical Ethics 7 (1):1-9 (2006)
AbstractBackground Requirements for organ donation after cardiac or imminent death have been introduced to address the transplantable organs shortage in the United States. Organ procurement organizations (OPOs) increasingly use the Internet for organ donation consent. Methods An analysis of OPO Web sites available to the public for enrollment and consent for organ donation. The Web sites and consent forms were examined for the minimal information recommended by the United States Department of Health and Human Services for informed consent. Content scores were calculated as percentages of data elements in four information categories: donor knowledge, donor consent reinforcement, donation promotion, and informed consent. Results There were 60 Web sites for organ donation enrollment serving the 52 states. The median percent (10 percentile-90 percentile) content scores of the Web sites for donor knowledge, donor consent reinforcement, and donation promotion were 33% (20–47), 79% (57–86), and 75% (50–100), respectively. The informed consent score was 0% (0–33). The content scores for donor knowledge and informed consent were significantly lower than donor consent reinforcement and donation promotion for all Web sites (P < .05). The content scores for the four categories were similar among the 11 regions of the United Network for Organ Sharing. Conclusion The Web sites and consent forms for public enrollment in organ donation do not fulfill the necessary requirements for informed consent. The Web sites predominantly provide positive reinforcement and promotional information rather than the transparent disclosure of organ donation process. Independent regulatory oversight is essential to ensure that Internet enrollment for organ donation complies with legal and ethical standards for informed consent
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References found in this work
Development of the University of Pittsburgh Medical Center Policy for the Care of Terminally Ill Patients Who May Become Organ Donors After Death Following the Removal of Life Support.Michael A. DeVita & James V. Snyder - 1993 - Kennedy Institute of Ethics Journal 3 (2):131-143.
Citations of this work
Donation After Cardiocirculatory Death: A Call for a Moratorium Pending Full Public Disclosure and Fully Informed Consent.Ari R. Joffe, Joe Carcillo, Natalie Anton, Allan deCaen, Yong Y. Han, Michael J. Bell, Frank A. Maffei, John Sullivan, James Thomas & Gonzalo Garcia-Guerra - 2011 - Philosophy, Ethics, and Humanities in Medicine 6:17.
Addressing Consent Issues in Donation After Circulatory Determination of Death.Kim J. Overby, Michael S. Weinstein & Autumn Fiester - 2015 - American Journal of Bioethics 15 (8):3-9.
Death, Brain Death, and the Limits of Science: Why the Whole-Brain Concept of Death Is a Flawed Public Policy.Mike Nair-Collins - 2010 - Journal of Law, Medicine and Ethics 38 (3):667-683.
Brain Death, States of Impaired Consciousness, and Physician-Assisted Death for End-of-Life Organ Donation and Transplantation.Joseph L. Verheijde, Mohamed Y. Rady & Joan L. McGregor - 2009 - Medicine, Health Care and Philosophy 12 (4):409-421.
Recovery of Transplantable Organs After Cardiac or Circulatory Death: Transforming the Paradigm for the Ethics of Organ Donation.Joseph L. Verheijde, Mohamed Y. Rady & Joan McGregor - 2007 - Philosophy, Ethics, and Humanities in Medicine 2:8-.
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