Clinical Ethics:147775092098357 (forthcoming)

Authors
Jamie Webb
University of Sussex at Brighton
Abstract
Deciding whether to grant an expanded access request for a child whose sibling is enrolled in a gene therapy trial involves a number of complex factors: considering the best interests of the child, the psychosocial and economic impact on the family, and the concerns and obligations of researchers. Despite the challenges in coming to a substantively fair outcome in cases of discordant eligibility, creating a procedurally fair decision-making process to adjudicate requests is essential.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1177/1477750920983571
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 72,541
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

No references found.

Add more references

Citations of this work BETA

Add more citations

Similar books and articles

Should We Change the Human Genome?Torbjörn Tännsjö - 1993 - Theoretical Medicine and Bioethics 14 (3).
Gene Replacement Therapy in the CNS: A View From the Retina.Gail M. Seigel - 1995 - Behavioral and Brain Sciences 18 (1):69-69.
Gene Therapy in Japan: Current Trends.Kazumasa Hoshino - 1995 - Cambridge Quarterly of Healthcare Ethics 4 (3):367.
Gene Therapy Oversight: Lessons for Nanobiotechnology.Susan M. Wolf, Rishi Gupta & Peter Kohlhepp - 2009 - Journal of Law, Medicine and Ethics 37 (4):659-684.

Analytics

Added to PP index
2021-01-14

Total views
3 ( #1,366,876 of 2,533,478 )

Recent downloads (6 months)
1 ( #391,480 of 2,533,478 )

How can I increase my downloads?

Downloads

Sorry, there are not enough data points to plot this chart.

My notes