Weaving Technology and Policy Together to Maintain Confidentiality

Journal of Law, Medicine and Ethics 25 (2-3):98-110 (1997)
  Copy   BIBTEX


Organizations often release and receive medical data with all explicit identifiers, such as name, address, telephone number, and Social Security number, removed on the assumption that patient confidentiality is maintained because the resulting data look anonymous. However, in most of these cases, the remaining data can be used to reidenafy individuals by linking or matching the data to other data bases or by looking at unique characteristics found in the fields and records of the data base itself. When these less apparent aspects are taken into account, each released record can map to many possible people, providing a level of anonymity that the recordholder determines. The greater the number of candidates per record, the more anonymous the data.I examine three general-purpose computer programs for maintaining patient confidentiality when disclosing electronic medical records: the Scrub System, which locates and suppresses or replaces personally identifying information in letters between doctors and in notes written by clinicians; the Datafly System, which generalizes values based on a profile of the data recipient at the time of disclosure; and the μ-Argus System, a somewhat similar system which is becoming a European standard for disclosing public use data.



    Upload a copy of this work     Papers currently archived: 76,199

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

The Risks of Absolute Medical Confidentiality.M. A. Crook - 2013 - Science and Engineering Ethics 19 (1):107-122.
Developing a federal policy on research misconduct.Sybil Francis - 1999 - Science and Engineering Ethics 5 (2):261-272.
Confidentiality revisited.Ke Yu - 2008 - Journal of Academic Ethics 6 (2):161-172.
Making the Technological Trustworthy.S. D. Noam Cook - 2010 - Knowledge, Technology & Policy 23 (3):455-459.
It’s Not About Technology.Joseph C. Pitt - 2010 - Knowledge, Technology & Policy 23 (3):445-454.


Added to PP

30 (#391,221)

6 months
1 (#448,894)

Historical graph of downloads
How can I increase my downloads?