Transforming normative, ableist, and biomedical orientations to living well and quality of life in nursing: Reimagining what a ventilated body can do

Nursing Inquiry 30 (3):e12554 (2023)
  Copy   BIBTEX


A goal of living as well as possible is central to practice and research with young adults living with home mechanical ventilation (HMV). Significant effort has been put into conceptualizing and measuring the quality of life (QOL) as a proxy for living well. Yet, dominant understandings of QOL have been influenced by normative, ableist, and biomedical discourses about what constitutes a good life that, when applied in practice and systems with those living with HMV, can contribute to exclusion and constrain opportunities to live well. Inquiry into what certain understandings of living well can do is critical to opening up possibilities to reimagine living well with HMV. This paper draws on findings from a critical narrative inquiry that explored the experiences of five young adults (ages 18–40 years) living with HMV. Data were co‐constructed virtually through an initial interview and photo‐elicitation using participant‐generated photographs. A critical narrative analysis of participants' stories made visible the ideological effects of ableist, biomedical, and individualist discourses and how the young adults reproduced and resisted these dominant discourses. Their stories further opened up possibilities for nurses and other healthcare providers to see living well and QOL differently.



    Upload a copy of this work     Papers currently archived: 92,923

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

The Life Worth Living: Disability, Pain, and Morality.Joel Michael Reynolds - 2022 - Minneapolis, MN, USA: University of Minnesota Press.
Disability, Ideology, and Quality of Life: A Bias in Biomedical Ethics.Ron Amundson - 2005 - In David Wasserman, Jerome Bickenbach & Robert Wachbroit (eds.), Quality of Life and Human Difference: Genetic Testing, Health Care, and Disability. Cambridge University Press. pp. 101-24.
Using Pain, Living with Pain.Emma Sheppard - 2018 - Feminist Review 120 (1):54-69.
Thinking Critically about Disability in Biomedical Ethics Courses.Christine Wieseler - 2015 - American Association of Philosophy Teachers Studies in Pedagogy 1:82-97.
Expressed Ableism.Stephen M. Campbell & Joseph A. Stramondo - 2022 - Ergo: An Open Access Journal of Philosophy 9.
Living Dis/Artfully with and in Illness.Patty Douglas, Carla Rice & Areej Siddiqui - 2020 - Journal of Medical Humanities 41 (3):395-410.


Added to PP

12 (#1,111,684)

6 months
8 (#414,134)

Historical graph of downloads
How can I increase my downloads?