Journal of Law, Medicine and Ethics 43 (3):529-537 (2015)

Authors
Laurence McCullough
Baylor College of Medicine
Stephanie Gutierrez
State University of New York, Oneonta
Abstract
The return of genetic research results after death in the pediatric setting comes with unique complexities. Researchers must determine which results and through which processes results are returned. This paper discusses the experience over 15 years in pediatric cancer genetics research of returning research results after the death of a child and proposes a preventive ethics approach to protocol development in order to improve the quality of return of results in pediatric genomic settings
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DOI 10.1111/jlme.12295
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