Katie Saulnier, Alison Berner, Stamatina Liosi, Brian Earp, Courtney Berrios, Stephanie O. M. Dyke, Charles Dupras & Yann Joly
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Epigenetics – the study of mechanisms that influence and modify gene expression – is providing unique insights into how an individual’s social and physical environment impact the body at a molecular level, particularly in populations that experience stigmatization and trauma. Researchers are employing epigenetic studies to illuminate how epigenetic modifications lead to imbalances in health outcomes for vulnerable populations. However, the investigation of factors that render a population epigenetically vulnerable present particular ethical and methodological challenges. Here we are concerned with demonstrating how, in targeting certain populations for epigenetic research, this research may be pathologizing socio-cultural and medical practices in those populations in a way that increases their vulnerability. Using a case study approach, this article examines three vulnerable populations currently of interest to epigenetic researchers – Indigenous, autistic, and transgender populations – in order to highlight some of the challenges of conducting non-stigmatizing research in epigenetics.
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References found in this work BETA
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Gatekeeping Hormone Replacement Therapy for Transgender Patients is Dehumanising.Florence Ashley - 2019 - Journal of Medical Ethics 45 (7):480-482.
Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement. [REVIEW]Pier Jaarsma & Stellan Welin - 2012 - Health Care Analysis 20 (1):20-30.
Indigenous Knowledge in a Postgenomic Landscape: The Politics of Epigenetic Hope and Reparation in Australia.Maurizio Meloni, Emma Kowal & Megan Warin - 2020 - Science, Technology, and Human Values 45 (1):87-111.
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