Journal of Law, Medicine and Ethics 41 (3):680-687 (2013)
AbstractPatient advocacy organizations (PAOs) advocate for increased research funding and policy changes and provide services to patients and their families. Given their credibility and political clout, PAOs are often successful in changing policies, increasing research funding, and increasing public awareness of medical conditions and the problems of their constituents. In order to advance their missions, PAOs accept funding, frequently from pharmaceutical firms. Industry funding can help PAOs advance their goals but can also create conflicts of interest (COI). Research indicates that bias may occur, even among well-meaning professionals, when people and organizations have financial COI. Industry funding may therefore influence PAOs to act in ways that favor the interests of their donors, which may increase the risk of harm to patients. This article extends the analysis developed in the Institute of Medicine report, Conflicts of Interest in Medical Research, Education, and Practice, and applies the analysis to understand PAOs and their relationships with industry. It argues that the preferred goal of institutional COI policies should not be to promote trust, but to promote trustworthiness and appropriately placed trust
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Citations of this work
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.Stephanie A. Kraft, Mildred K. Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E. Ormond, Harold S. Luft, Benjamin S. Wilfond & Sandra Soo-Jin Lee - 2018 - American Journal of Bioethics 18 (4):3-20.
Public Epistemic Trustworthiness and the Integration of Patients in Psychiatric Classification.Anke Bueter - 2018 - Synthese 198 (Suppl 19):4711-4729.
Lessons From Corporate Influence in the Opioid Epidemic: Toward a Norm of Separation.Jonathan H. Marks - 2020 - Journal of Bioethical Inquiry 17 (2):173-189.
Patient‐Engaged Research: Choosing the “Right” Patients to Avoid Pitfalls.Emily A. Largent, Holly Fernandez Lynch & Matthew S. McCoy - 2018 - Hastings Center Report 48 (5):26-34.
Pharmaceutical Ethics and Grassroots Activism in the United States: A Social History Perspective.Sharon Batt, Judy Butler, Olivia Shannon & Adriane Fugh-Berman - 2020 - Journal of Bioethical Inquiry 17 (1):49-60.
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