Is intersexuality a mere difference or disorder?

Bioethics 36 (6):673-679 (2022)
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Abstract

Is intersexuality a mere difference or disorder? Since the 2006 Chicago consensus statement's disorder of sexual development (DSD) nomenclature, intersex scholars have criticized and repudiated the use of “disorder” by arguing that it is medically inaccurate, yields unwarranted surgical implications, unnecessarily pathologizes intersex individuals, and that, most importantly, intersex individuals do not prefer it. They argue for linguistic alternatives such as “difference” and other similar alternatives, for example, “variation,” “divergence,” and so forth. These criticisms of “disorder” have had significant uptake by scholars writing on intersexuality. While the motivation(s) for using “mere difference” is doubtless rooted in beneficence for intersex persons, medically inaccurate intersex terminology compromises optimal clinical care and should consequently be either abandoned or revised. This focus paper argues (moderately) for the thesis that some cases of intersex are disorders, and some mere differences. The upshot of my proposal is not only that it conceptually disambiguates disorder and mere difference, but by failing to generalize unique intersex individuals their care is prioritized.

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Rashad Rehman
Franciscan University of Steubenville

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