Cambridge Quarterly of Healthcare Ethics 28 (3):476-487 (2019)
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:Open neural tube defects or myelomeningoceles are a common congenital condition caused by failure of closure of the neural tube early in gestation, leading to a number of neurologic sequelae including paralysis, hindbrain herniation, hydrocephalus and neurogenic bowel and bladder dysfunction. Traditionally, the condition was treated by closure of the defect postnatally but a recently completed randomized controlled trial of prenatal versus postnatal closure demonstrated improved neurologic outcomes in the prenatal closure group. Fetal surgery, or more precisely maternal-fetal surgery, raises a number of ethical issues that we address including who the patient is, informed consent, surgical innovation and equipoise as well maternal assumption of risk. As the procedure becomes more widely adopted into practice, we suggest close monitoring of new fetal surgery centers, in order to ensure that the positive results of the trial are maintained without increased risk to both the mother and fetus.
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DOI | 10.1017/s0963180119000409 |
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References found in this work BETA
Paper: Ethical Challenges in Fetal Surgery.Anna Smajdor - 2011 - Journal of Medical Ethics 37 (2):88-91.
Maternal-Fetal Surgery: The Fallacy of Abstraction and the Problem of Equipoise. [REVIEW]Anne Drapkin Lyerly & Mary Briody Mahowald - 2001 - Health Care Analysis 9 (2):151-165.
Randomized Controlled Trials of Maternal‐Fetal Surgery: A Challenge to Clinical Equipoise.H. C. M. L. Rodrigues & P. P. van den Berg - 2014 - Bioethics 28 (8):405-413.
Citations of this work BETA
Retrieving the Moral in the Ethics of Maternal-Fetal Surgery.Virginia L. Bartlett & Mark J. Bliton - 2020 - Cambridge Quarterly of Healthcare Ethics 29 (3):480-493.
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