The ‘Expiry Problem’ of broad consent for biobank research - And why a meta consent model solves it

Journal of Medical Ethics 46 (9):629-631 (2020)
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Abstract

In this response to Neil Manson’s latest intervention in our debate about the best consent model for biobank research we show, contra Manson that the ‘expiry problem’ that affects broad consent models because of changes over time in methods, purposes, types of data used and governance structures is a real and significant problem. We further show that our preferred implementation of meta consent as a national consent platform solves this problem and is not subject to the cost and burden objections that Manson raises.

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References found in this work

Informed consent and genetic information.O. O'Neill - 2001 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 32 (4):689-704.

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