American Journal of Bioethics 18 (3):4-9 (2018)

Inclusion of children in medical decision making, to the extent of their ability and interest in doing so, should be the default position, ensuring that children are routinely given a voice. However, optimizing the involvement of children in their health care decisions remains challenging for clinicians. Missing from the literature is a stepwise approach to assessing when and how a child should be included in medical decision making. We propose a systematic approach for doing so, and we apply this approach in a discussion of two challenging clinical cases. The approach is informed by a literature review, and is anchored by case studies of teenagers' refusal of clinical care, regulatory requirements for research assent, and the accepted approach to involving cognitively impaired adults in medical decisions.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1080/15265161.2017.1418921
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 69,226
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

The Competence of Children: No Longer All or None.Willard Gaylin - 1982 - Hastings Center Report 12 (2):33-38.

Add more references

Citations of this work BETA

View all 12 citations / Add more citations

Similar books and articles

Beyond Informed Consent - Part II.Kate Jones - 2007 - Chisholm Health Ethics Bulletin 13 (2):6.


Added to PP index

Total views
18 ( #605,665 of 2,499,711 )

Recent downloads (6 months)
1 ( #418,066 of 2,499,711 )

How can I increase my downloads?


My notes