Defining categories of actionability for secondary findings in next-generation sequencing
Journal of Medical Ethics 43 (5):346-349 (2017)
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10.1136/medethics-2016-103677
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Informed Consent and the Disclosure of Clinical Results to Research Participants.Effy Vayena, Samia A. Hurst, Celine Moret & Alessandro Blasimme - 2017 - American Journal of Bioethics 17 (7):58-60.
A systematic approach to the disclosure of genomic findings in clinical practice and research: a proposed framework with colored matrix and decision-making pathways.Tomohide Ibuki, Shimon Tashiro, Keiichiro Yamamoto & Kenji Matsui - 2021 - BMC Medical Ethics 22 (1):1-16.
Exploring neurologists’ perspectives on the return of next generation sequencing results to their patients: a needed step in the development of guidelines.Thierry Hurlimann, Iris Jaitovich Groisman & Béatrice Godard - 2018 - BMC Medical Ethics 19 (1):81.
Differences in Conceptual Understanding of the “Actionability” of Incidental Findings and the Resultant Difference in Ethical Responsibility: An Empirical Study in Japan.Tomohide Ibuki, Keiichiro Yamamoto & Kenji Matsui - 2020 - AJOB Empirical Bioethics 11 (3):187-194.
References found in this work
Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations.Susan M. Wolf, Frances P. Lawrenz, Charles A. Nelson, Jeffrey P. Kahn, Mildred K. Cho, Ellen Wright Clayton, Joel G. Fletcher, Michael K. Georgieff, Dale Hammerschmidt, Kathy Hudson, Judy Illes, Vivek Kapur, Moira A. Keane, Barbara A. Koenig, Bonnie S. LeRoy, Elizabeth G. McFarland, Jordan Paradise, Lisa S. Parker, Sharon F. Terry, Brian Van Ness & Benjamin S. Wilfond - 2008 - Journal of Law, Medicine and Ethics 36 (2):219-248.
Disclosing individual genetic results to research participants.Vardit Ravitsky & Benjamin S. Wilfond - 2006 - American Journal of Bioethics 6 (6):8 – 17.
Direct-to-consumer genomics on the scales of autonomy.Effy Vayena - 2015 - Journal of Medical Ethics 41 (4):310-314.
