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“It’s my blood”: ethical complexities in the use, storage and export of biological samples: perspectives from South African research participants
BMC Medical Ethics 15 (1):4 (2014)
Abstract
The use of biological samples in research raises a number of ethical issues in relation to consent, storage, export, benefit sharing and re-use of samples. Participant perspectives have been explored in North America and Europe, with only a few studies reported in Africa. The amount of research being conducted in Africa is growing exponentially with volumes of biological samples being exported from the African continent. In order to investigate the perspectives of African research participants, we conducted a study at research sites in the Western Cape and Gauteng, South AfricaLinks
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Evaluating models of consent in changing health research environments.Svenja Wiertz & Joachim Boldt - 2022 - Medicine, Health Care and Philosophy 25 (2):269-280.
“It’s all about trust”: reflections of researchers on the complexity and controversy surrounding biobanking in South Africa.Keymanthri Moodley & Shenuka Singh - 2016 - BMC Medical Ethics 17 (1):57.
The role of Data Transfer Agreements in ethically managing data sharing for research in South Africa.S. Mahomed, G. Loots & C. Staunton - forthcoming - South African Journal of Bioethics and Law:26-30.
Rules of engagement: perspectives on stakeholder engagement for genomic biobanking research in South Africa.Ciara Staunton, Paulina Tindana, Melany Hendricks & Keymanthri Moodley - 2018 - BMC Medical Ethics 19 (1):13.
References found in this work
Qualitative study of knowledge and attitudes to biobanking among lay persons in Nigeria.Michael A. Igbe & Clement A. Adebamowo - 2012 - BMC Medical Ethics 13 (1):27-.
Health Research Ethics Committees in South Africa 12 years into democracy.Myer Landon & Moodley Keymanthri - 2007 - BMC Medical Ethics 8 (1):1-8.
Collection, storage and use of blood samples for future research: views of Egyptian patients expressed in a cross-sectional survey.A. Abou-Zeid, H. Silverman, M. Shehata, M. Shams, M. Elshabrawy, T. Hifnawy, S. A. Rahman, B. Galal, H. Sleem, N. Mikhail & N. Moharram - 2010 - Journal of Medical Ethics 36 (9):539-547.
"It's for a good cause, isn't it?" - Exploring views of South African TB research participants on sample storage and re-use.Gerrit van Schalkwyk, Jantina de Vries & Keymanthri Moodley - 2012 - BMC Medical Ethics 13 (1):19-.
Research on stored biological samples: the views of Ugandans.David Wendler, Christine Pace, Ambrose O. Talisuna, Faustine Maiso, Christine Grady & Ezekiel Emanuel - 2005 - IRB: Ethics & Human Research 27 (2):1.
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