Building on relationships of trust in biobank research
Journal of Medical Ethics 31 (7):415-418 (2005)
Abstract
Trust among current and future patients is essential for the success of biobank research. The submission of an informed consent is an act of trust by a patient or a research subject, but a strict application of the rule of informed consent may not be sensitive to the multiplicity of patient interests at stake, and could thus be detrimental to trust. According to a recently proposed law on “genetic integrity” in Sweden, third parties will be prohibited from requesting or seeking genetic information about an individual. Cumbersome restrictions on research may be lifted, thus creating a more favourable climate for medical researchDOI
10.1136/jme.2004.009456
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Citations of this work
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References found in this work
Genetic Privacy: A Challenge to Medico-Legal Norms.Graeme Laurie - 2002 - Cambridge University Press.
Genetic privacy: a challenge to medico-legal norms: G Laurie. Cambridge University Press, 2002, 50.00 (hbk), pp 335. ISBN 0521660270. [REVIEW]D. Dickenson - 2003 - Journal of Medical Ethics 29 (6):373-374.
