Population Genomics and Research Ethics with Socially Identifiable Groups

Journal of Law, Medicine and Ethics 35 (3):356-370 (2007)
  Copy   BIBTEX

Abstract

The genetic revolution is well underway, with genetic research and knowledge expanding at an exponential rate. Much of the new genetics research is focused on population groups, and proponents of “population genomics” argue that such studies are necessary since genetic “variation” among human populations holds the most promise for technological innovations that can improve human health and lead to increased understanding of the origin of human populations. Population genomic research thus targets specific groups to discover variation that could lead to knowledge about genetic disorders, possible cures, and the origin and migration patterns of distinctive peoples. Research on genetic differences among groups or populations, however, raises many pressing ethical and legal questions. For example, focus on biological differences of racial and ethnic groups has in the past lead to assumptions about superiority and inferiority between groups, and in practice resulted in stigmatization and discrimination. Consequently, attention on groups should raise legal and moral red flags and compel us to move cautiously in this area. Pragmatically, targeting population groups as the object of study requires the determination of the nature and scope of “population groups” for purposes of genetics research.

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 92,038

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Population Genomics and Research Ethics with Socially Identifable Groups.Joan L. McGregor - 2007 - Journal of Law, Medicine and Ethics 35 (3):356-370.
Ethics of Population-Based Research.Holly A. Taylor & Summer Johnson - 2007 - Journal of Law, Medicine and Ethics 35 (2):295-299.
Defining the Subject of Consent in DNA Research.Gordon R. Mitchell - 2001 - Journal of Medical Humanities 22 (1):41-53.

Analytics

Added to PP
2016-02-04

Downloads
19 (#800,274)

6 months
4 (#792,283)

Historical graph of downloads
How can I increase my downloads?

Author's Profile

Joan Mcgregor
Arizona State University