Michael Parker, Francois Nosten, Nicholas P. J. Day, Nicholas J. White, Phaik Kin Cheah, Phaik Yeong Cheah & Khin Maung Lwin
BMC Medical Ethics 15 (1) (2014)
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Abstract |
BackgroundCommunity engagement is increasingly promoted as a marker of good, ethical practice in the context of international collaborative research in low-income countries. There is, however, no widely agreed definition of community engagement or of approaches adopted. Justifications given for its use also vary. Community engagement is, for example, variously seen to be of value in: the development of more effective and appropriate consent processes; improved understanding of the aims and forms of research; higher recruitment rates; the identification of important ethical issues; the building of better relationships between the community and researchers; the obtaining of community permission to approach potential research participants; and, the provision of better health care. Despite these diverse and potentially competing claims made for the importance of community engagement, there is very little published evidence on effective models of engagement or their evaluation.MethodsIn this paper, drawing upon interviews with the members of a Community Advisory Board on the Thai-Myanmar border, we describe and critically reflect upon an approach to community engagement which was developed in the context of international collaborative research in the border region.Results and conclusionsDrawing on our analysis, we identify a number of considerations relevant to the development of an approach to evaluating community engagement in this complex research setting. The paper also identifies a range of important ways in which the Community Advisory Board is in practice understood by its members to have morally significant roles and responsibilities beyond those usually associated with the successful and appropriate conduct of research.
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DOI | 10.1186/1472-6939-15-12 |
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Experiences From a Community Advisory Board in the Implementation of Early Access to ART for All in Eswatini: A Qualitative Study.Charmaine Khudzie Mlambo, Eva Vernooij, Roos Geut, Eliane Vrolings, Buyisile Shongwe, Saima Jiwan, Yvette Fleming & Gavin Khumalo - 2019 - BMC Medical Ethics 20 (1):50.
Forming and Implementing Community Advisory Boards in Low- and Middle-Income Countries: A Scoping Review.Yang Zhao, Thomas Fitzpatrick, Bin Wan, Suzanne Day, Allison Mathews & Joseph D. Tucker - 2019 - BMC Medical Ethics 20 (1):1-11.
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