When Should Genome Researchers Disclose Misattributed Pahentage?

Hastings Center Report 45 (4):28-36 (2015)
  Copy   BIBTEX

Abstract

Research studies increasingly use genomic sequencing to draw inferences based on comparisons between the genetic data of a set of purportedly related individuals. As use of this method progresses, it will become much more common to discover that the assumed biological relationships between the individuals are mistaken. Consequently, researchers will have to grapple with decisions about whether to return incidental findings of misattributed parentage on a much larger scale than ever before. In this paper we provide an extended argument for the view that the default position for researchers ought to be the non-disclosure of misattributed parentage.

Similar books and articles

Disclosing Misattributed Paternity.Lainie Friedman Ross - 1996 - Bioethics 10 (2):114–130.
Should Researchers Disclose Results to Descendants?Mark A. Rothstein - 2013 - American Journal of Bioethics 13 (10):64 - 65.
Incidental Findings in Genetics Research Using Archived DNA.Ellen Wright Clayton - 2008 - Journal of Law, Medicine and Ethics 36 (2):286-291.
The Genome as a Developmental Organ.Ehud Lamm - 2014 - Journal of Physiology 592 (11):2237-2244.

Analytics

Added to PP
2016-06-30

Downloads
245 (#48,239)

6 months
29 (#36,639)

Historical graph of downloads
How can I increase my downloads?

Author's Profile

Joseph Millum
University of St. Andrews