Hastings Center Report 43 (2):38-47 (2013)
AbstractIn this paper we analyze the non-coercive ways in which researchers can use knowledge about the decision-making tendencies of potential participants in order to motivate them to consent to research enrollment. We identify which modes of influence preserve respect for participants’ autonomy and which disrespect autonomy, and apply the umbrella term of manipulation to the latter. We then apply our analysis to a series of cases adapted from the experiences of clinical researchers in order to develop a framework for thinking through the ethics of manipulating people into research participation. All manipulation disrespects autonomy and is therefore pro tanto wrong. However, only deceptive manipulation invalidates the consent that results from it. Use of the other forms of manipulation can be permissible, but only if the outcome of using manipulation is sufficiently good and if the research cannot be carried out using ethically preferable means to obtain consent.
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References found in this work
Coercion.Robert Nozick - 1969 - In White Morgenbesser (ed.), Philosophy, Science, and Method: Essays in Honor of Ernest Nagel. St Martin's Press. pp. 440--72.
Payment for Research Participation: A Coercive Offer?A. Wertheimer & F. G. Miller - 2008 - Journal of Medical Ethics 34 (5):389-392.
A Definition of Deceiving.James Edwin Mahon - 2007 - International Journal of Applied Philosophy 21 (2):181-194.
Citations of this work
Informed Consent: What Must Be Disclosed and What Must Be Understood?Joseph Millum & Danielle Bromwich - 2021 - American Journal of Bioethics 21 (5):46-58.
Reframing Recruitment: Evaluating Framing in Authorization for Research Contact Programs.Candace D. Speight, Charlie Gregor, Yi-An Ko, Stephanie A. Kraft, Andrea R. Mitchell, Nyiramugisha K. Niyibizi, Bradley G. Phillips, Kathryn M. Porter, Seema K. Shah, Jeremy Sugarman, Benjamin S. Wilfond & Neal W. Dickert - 2021 - AJOB Empirical Bioethics 12 (3):206-213.
Freedom and Indoctrination.Michael Garnett - 2015 - Proceedings of the Aristotelian Society 115 (2pt2):93-108.
Autonomy and Couples’ Joint Decision-Making in Healthcare.Pauline E. Osamor & Christine Grady - 2018 - BMC Medical Ethics 19 (1):1-8.
Nudge or Grudge? Choice Architecture and Parental Decision‐Making.Jennifer Blumenthal-Barby & Douglas J. Opel - 2018 - Hastings Center Report 48 (2):33-39.
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