The Role of Participants in a Medical Information Commons

Journal of Law, Medicine and Ethics 47 (1):51-61 (2019)
  Copy   BIBTEX

Abstract

Meaningful participant engagement has been identified as a key contributor to the success of efforts to share data via a “Medical Information Commons”. We present findings from expert stakeholder interviews aimed at understanding barriers to engagement and the appropriate role of MIC participants. Although most interviewees supported engagement, they distinguished between individual versus collective forms. They also noted challenges including representation and perceived inefficiency, prompting reflection on political aspects of engagement and efficiency concerns.

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 76,442

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Medical ethics: who decides what?M. Kottow - 1983 - Journal of Medical Ethics 9 (2):105-108.
Locke, intellectual property rights, and the information commons.Herman T. Tavani - 2005 - Ethics and Information Technology 7 (2):87-97.

Analytics

Added to PP
2019-04-18

Downloads
13 (#768,756)

6 months
1 (#454,876)

Historical graph of downloads
How can I increase my downloads?