Journal of Bioethical Inquiry 19 (1):85-96 (2022)

Authors
Stacy Carter
University of Sydney
Abstract
High-dose chemotherapy and autologous stem cell transplantation is used to treat some advanced malignancies. It is a traumatic procedure, with a high complication rate and significant mortality. ASCT patients and their carers draw on many sources of information as they seek to understand the procedure and its consequences. Some seek information from beyond orthodox medicine. Alternative beliefs and practices may conflict with conventional understanding of the theory and practice of ASCT, and ‘contested understandings’ might interfere with patient adherence to the strict and demanding protocols required for successful ASCT.The present study, conducted in Sydney, Australia, examines narrative-style interviews with 10 sequentially recruited ASCT patients and nine of their carers conducted at the time of transplant and three months later. Transcripts were read for instances of mention of alternative advice, and for instances of contested understanding of information relevant to the transplant.Patients and carer pairs expressed closely concordant views about alternative advice. Five pairs were consulting alternative practitioners. Contested understanding was expressed in four domains—understandings of the transplant itself and its underlying theory, of the relationship between the components of the ‘transplant’, of the nature and role of stem cells, and of beliefs about bodily function and life-style. Contested understandings of the transplant treatment were expressed as predominantly personal interpretations of orthodox informationPatients and carers seemed to recognise that alternative and conventional systems were discordant, yet they were able to separate the two, and adhere to each practice without prejudicing their medical treatment. A single case of late, post-transplant repudiation of Western medicine is discussed to emphasise some of the possible determinants of dissonance when it does occur.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
ISBN(s)
DOI 10.1007/s11673-022-10177-9
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 71,410
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

The Structure of Scientific Revolutions.Thomas S. Kuhn - 1962 - University of Chicago Press.
Discovery and Explanation in Biology and Medicine.Kenneth F. Schaffner - 1995 - Journal of the History of Biology 28 (1):172-174.

View all 13 references / Add more references

Citations of this work BETA

Add more citations

Similar books and articles

Pluralism, Tolerance and Moral Education.R. J. Royce - 1982 - Journal of Moral Education 11 (3):173-180.
Carnap’s Tolerance, Meaning, and Logical Pluralism.Greg Restall - 2002 - Journal of Philosophy 99 (8):426 - 443.
On Tolerance, Pluralism, and Criticism.V. A. Lektorskii - 1998 - Russian Studies in Philosophy 37 (1):9-21.
Tolerance: Between Forbearance and Acceptance.Hans Oberdiek - 2001 - Rowman & Littlefield Publishers.
Pluralism, Toleration, and Ethical Promiscuity.Philip J. Ivanhoe - 2009 - Journal of Religious Ethics 37 (2):311-329.

Analytics

Added to PP index
2022-04-01

Total views
1 ( #1,552,804 of 2,519,703 )

Recent downloads (6 months)
1 ( #406,314 of 2,519,703 )

How can I increase my downloads?

Downloads

Sorry, there are not enough data points to plot this chart.

My notes