Kennedy Institute of Ethics Journal 15 (4):371-383 (2005)

: Advances in medical technology now permit children who need ventilator assistance to live at home rather than in hospitals or institutions. What does this ventilator-dependent life mean to children and their families? The impetus for this essay comes from a study of the moral experience of 12 Canadian families—parents, ventilator-dependent child, and well siblings. These families express great love for their children, take on enormous responsibilities for care, live with uncertainty, and attempt to create "normal" home environments. Nevertheless, they experience social isolation, sometimes even from their extended families and health care providers. Their lives are constrained in many ways. The challenges faced by parents of technology-dependent children raise questions of justice within society and within families
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1353/ken.2005.0027
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 71,355
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

No references found.

Add more references

Citations of this work BETA

Redefining Disability: Maleficent, Unjust and Inconsistent.B. Cox-White & S. F. Boxall - 2008 - Journal of Medicine and Philosophy 33 (6):558-576.

Add more citations

Similar books and articles


Added to PP index

Total views
15 ( #700,870 of 2,519,516 )

Recent downloads (6 months)
1 ( #407,153 of 2,519,516 )

How can I increase my downloads?


My notes