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Lethal Language, Lethal Decisions
Hastings Center Report 33 (2):37-41 (2003)
Abstract
Although many of the congenital syndromes that used to be lethal no longer are, they are still routinely referred to as “lethal anomalies.” But the label is not only inaccurate, it is also dangerous: by portraying as a medical determination what is in fact a judgment about the child's quality of life, it wrests from the parents a decision that only the parents can make.Author's Profile
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Citations of this work
The Relational Potential Standard: Rethinking the Ethical Justification for Life‐Sustaining Treatment for Children with Profound Cognitive Disabilities.Aaron Wightman, Jennifer Kett, Georgina Campelia & Benjamin S. Wilfond - 2019 - Hastings Center Report 49 (3):18-25.
A Conceptual Model for the Translation of Bioethics Research and Scholarship.Debra J. H. Mathews, D. Micah Hester, Jeffrey Kahn, Amy McGuire, Ross McKinney, Keith Meador, Sean Philpott-Jones, Stuart Youngner & Benjamin S. Wilfond - 2016 - Hastings Center Report 46 (5):34-39.
Conflicts between parents and clinicians: Tracheotomy decisions and clinical bioethics consultation.Kristi Klee, Benjamin Wilfond, Karen Thomas & Debra Ridling - 2022 - Nursing Ethics 29 (3):685-695.
Navigating Growth Attenuation in Children with Profound Disabilities.Benjamin S. Wilfond, Paul Steven Miller, Carolyn Korfiatis, Douglas S. Diekema, Denise M. Dudzinski & Sara Goering - 2010 - Hastings Center Report 40 (6):27-40.
Navigating Growth Attenuation in Children with Profound Disabilities.Benjamin S. Wilfond, Paul Steven Miller, Carolyn Korfiatis, Douglas S. Diekema, Denise M. Dudzinski, Sara Goering & The Seattle Growth Attenuation and Ethics Working Group - 2010 - Hastings Center Report 40 (6):27-40.
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