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Incorporating Biobank Consent into a Healthcare Setting: Challenges for Patient Understanding
AJOB Empirical Bioethics 12 (2):113-122 (2021)
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Citations of this work
Better governance starts with better words: why responsible human tissue research demands a change of language.Annelien L. Bredenoord, Sarah N. Boers, Karin R. Jongsma & Michael A. Lensink - 2022 - BMC Medical Ethics 23 (1):1-10.
Genetic Data Aren't So Special: Causes and Implications of Reidentification.T. J. Kasperbauer & Peter H. Schwartz - 2020 - Hastings Center Report 50 (5):30-39.
Exploring how biobanks communicate the possibility of commercial access and its associated benefits and risks in participant documents.A. Lucassen, R. Broekstra, F. Hardcastle & G. Samuel - 2022 - BMC Medical Ethics 23 (1):1-14.
References found in this work
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.Stephanie A. Kraft, Mildred K. Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E. Ormond, Harold S. Luft, Benjamin S. Wilfond & Sandra Soo-Jin Lee - 2018 - American Journal of Bioethics 18 (4):3-20.
Exploring Understanding of “Understanding”: The Paradigm Case of Biobank Consent Comprehension.Laura M. Beskow & Kevin P. Weinfurt - 2019 - American Journal of Bioethics 19 (5):6-18.
Design Issues in E-Consent.John Wilbanks - 2018 - Journal of Law, Medicine and Ethics 46 (1):110-118.
Moving From Understanding of Consent Conditions to Heuristics of Trust.Michael M. Burgess & Kieran C. O’Doherty - 2019 - American Journal of Bioethics 19 (5):24-26.
Ignorance Isn’t Bliss: Retaining a Meaningful Comprehension Requirement for Consent to Research.Paul S. Appelbaum - 2019 - American Journal of Bioethics 19 (5):22-24.
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