Self-Critical Federal Science? The Ethics Experiment within the U.S. Human Genome Project: ERIC T. JUENGST

Social Philosophy and Policy 13 (2):63-95 (1996)

Abstract

On October 1, 1988, thirty-five years after co-discovering the structure of the DNA molecule, Dr. James Watson launched an unprecedented experiment in American science policy. In response to a reporter's question at a press conference, he unilaterally set aside 3 to 5 percent of the budget of the newly launched Human Genome Project to support studies of the ethical, legal, and social implications of new advances in human genetics. The Human Genome Project, by providing geneticists with the molecular maps of the human chromosomes that they use to identify specific human genes, will speed the proliferation of a class of DNA-based diagnostic and risk-assessment tests that already create professional ethical and health-policy challenges for clinicians. “The problems are with us now, independent of the genome program, but they will be associated with it,” Watson said. “We should devote real money to discussing these issues.” By 1994, the “ELSI program” had spent almost $20 million in pursuit of its mission, and gained both praise and criticism for its accomplishments.

Download options

PhilArchive



    Upload a copy of this work     Papers currently archived: 72,891

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Analytics

Added to PP
2010-08-31

Downloads
51 (#226,545)

6 months
1 (#386,040)

Historical graph of downloads
How can I increase my downloads?

Similar books and articles

The Human Genome Project and the Social Contract: A Law Policy Approach.Christian Byk - 1992 - Journal of Medicine and Philosophy 17 (4):371-380.
The Human Genome Project and Bioethics.Eric T. Juengst - 1991 - Kennedy Institute of Ethics Journal 1 (1):71-74.
Orphan Tests.Leslie G. Biesecker - 1996 - Cambridge Quarterly of Healthcare Ethics 5 (2):300.
Subversive Reflections on the Human Genome Project.Alex Rosenberg - 1994 - PSA: Proceedings of the Biennial Meeting of the Philosophy of Science Association 1994:329 - 335.
Human Genome Editing and Ethical Considerations.Kewal Krishan, Tanuj Kanchan & Bahadur Singh - 2016 - Science and Engineering Ethics 22 (2):597-599.