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Patient Representation: Mind the Gap Between Individual and Collective Claims
American Journal of Bioethics 20 (4):28-30 (2020)
Abstract
With the increasing attention paid to patient participation in both health care policy-making and health care research, McCoy and colleagues (2020) point to a key ethical issue, namely the quest fo...Author's Profile
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Citations of this work
Cognitive Transformation, Dementia, and the Moral Weight of Advance Directives.Emily Walsh - 2020 - American Journal of Bioethics 20 (8):54-64.
Like Autism, Representation Falls on a Spectrum.Nanette Elster & Kayhan Parsi - 2020 - American Journal of Bioethics 20 (4):4-5.
References found in this work
Epistemic injustice: power and the ethics of knowing.Miranda Fricker - 2007 - New York: Oxford University Press.
Ethical Advocacy Across the Autism Spectrum: Beyond Partial Representation.Matthew S. McCoy, Emily Y. Liu, Amy S. F. Lutz & Dominic Sisti - 2020 - American Journal of Bioethics 20 (4):13-24.
Epistemic injustice in dementia and autism patient organizations: An empirical analysis.Karin Jongsma, Elisabeth Spaeth & Silke Schicktanz - 2017 - AJOB Empirical Bioethics 8 (4):221-233.
One For All, All For One? Collective Representation in Healthcare Policy.Karin Jongsma, Nitzan Rimon-Zarfaty, Aviad Raz & Silke Schicktanz - 2018 - Journal of Bioethical Inquiry 15 (3):337-340.
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