Coming to Grips with Genetic Exceptionalism: Roots and Reach of an Explanatory Model [Book Review]

Medicine Studies 1 (2):131-142 (2009)
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Abstract

Is genetic information different from other types of medical information and is therefore a special treatment required because of its special features? This question has been discussed since the mid-1990s under the label of genetic exceptionalism. This article discusses the essential arguments of the genetic exceptionalism discourse and analyzes their ethical reach. The primary question of this paper is whether the arguments of the current debate, with its predominantly scientific focus, are capable of solving the ethical questions raised by genetic exceptionalism in such a way as to do justice to the normative scope and epistemological complexity. The author argues that the current genetic exceptionalism discourse is restrictive and offers little opportunity for exploring viable and ethically justifiable solutions regarding the implementation of genetic information in medical practice. Discourses on genetic exceptionalism should not only adhere to scientifically consistent criteria but also reflect individual perceptions and cultural values, enriched by adequate historical reflection

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References found in this work

Genetic exceptionalism & legislative pragmatism.Mark A. Rothstein - 2005 - Hastings Center Report 35 (4):27-33.
How distinctive is genetic information?M. Richards - 2001 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 32 (4):663-687.
Geneticization: The Cyprus Paradigm.Henk ten Have & Rogeer Hoedemaekers - 1998 - Journal of Medicine and Philosophy 23 (3):274-287.

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