Big Bad Data: Law, Public Health, and Biomedical Databases
Journal of Law, Medicine and Ethics 41 (s1):56-60 (2013)
Abstract
The accelerating adoption of electronic health record systems will have profound impacts on clinical care. It will also have far-reaching implications for public health research and surveillance, which in turn could lead to changes in public policy, statutes, and regulations. The public health benefits of EHR use can be significant. However, researchers and analysts who rely on EHR data must proceed with caution and understand the potential limitations of EHRs.Much has been written about the risk of EHR privacy breaches. This paper focuses on a different set of concerns, those relating to data quality. Unlike clinical trial data, EHR data is not recorded primarily to meet the needs of researchers. Because of clinicians’ workloads, poor user-interface design, and other factors, EHR data is surprisingly likely to be erroneous, miscoded, fragmented, and incomplete. Although EHRs eliminate the problem of cryptic handwriting, other kinds of errors are more common with EHRs than with paper records.My notes
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Ethics and Epistemology in Big Data Research.Wendy Lipworth, Paul H. Mason, Ian Kerridge & John P. A. Ioannidis - 2017 - Journal of Bioethical Inquiry 14 (4):489-500.
Data Sharing in the Context of Health-Related Citizen Science.Mary A. Majumder & Amy L. McGuire - 2020 - Journal of Law, Medicine and Ethics 48 (S1):167-177.
Examination and diagnosis of electronic patient records and their associated ethics: a scoping literature review.Tim Jacquemard, Colin P. Doherty & Mary B. Fitzsimons - 2020 - BMC Medical Ethics 21 (1):1-13.
The anatomy of electronic patient record ethics: a framework to guide design, development, implementation, and use.Tim Jacquemard, Colin P. Doherty & Mary B. Fitzsimons - 2021 - BMC Medical Ethics 22 (1):1-14.