Morenike Oluwatoyin Folayan, Kristin Peterson, Bridget Haire, Brandon Brown, Kadiri Audu, Olumide Makanjuola, Babatunde Pelemo & Vicki Marsh
Developing World Bioethics 15 (3):214-225 (2015)
Abstract |
HIV prevention is a critical health issue in Nigeria; a country that has one of the worst HIV epidemic profiles in the world. With 270,000 new infections in 2012, Nigeria is a prime site for HIV prevention research. One effect of the HIV epidemic has been to revolutionalise ethical norms for the conduct of research: it is now considered unethical to design and implement HIV related studies without community engagement. Unfortunately, there is very little commensurate effort in building the capacity of local persons to engage actively with researchers, and there is no existing platform to facilitate dialogue between researchers and communities engaged in research in Nigeria. In an effort to address this gap, we undertook a series of three community dialogues and two community-researcher interface meetings in Nigeria. This paper aims to give an empirical account of the dialogue from these community engagement processes and provide a resulting critique of the implementation of research ethics practices in Nigeria. It is anticipated that the outputs will: support researchers in designing community-based research protocols; inform ethics committees of key considerations during research protocol reviews from a community perspective; and inform policy makers and research sponsors about issues of primary concern to communities with respect to HIV research
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Keywords | community dialogue community engagement Nigeria consent standard of care |
Categories | (categorize this paper) |
DOI | 10.1111/dewb.12064 |
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References found in this work BETA
Working with Concepts: The Role of Community in International Collaborative Biomedical Research.V. M. Marsh, D. K. Kamuya, M. J. Parker & C. S. Molyneux - 2011 - Public Health Ethics 4 (1):26-39.
Outcome of a Research Ethics Training Workshop Among Clinicians and Scientists in a Nigerian University.Ademola J. Ajuwon & Nancy Kass - 2008 - BMC Medical Ethics 9 (1):1.
The Standard of Care Debate: Against the Myth of an "International Consensus Opinion".U. Schuklenk - 2004 - Journal of Medical Ethics 30 (2):194-197.
'It Looks Like You Just Want Them When Things Get Rough': Civil Society Perspectives on Negative Trial Results and Stakeholder Engagement in HIV Prevention Trials.Jennifer Koen, Zaynab Essack, Catherine Slack, Graham Lindegger & Peter A. Newman - 2012 - Developing World Bioethics 12 (3):138-148.
Citations of this work BETA
Defining and Negotiating the Social Value of Research in Public Health Facilities: Perceptions of Stakeholders in a Research‐Active Province of South Africa.Elizabeth Lutge, Catherine Slack & Douglas Wassenaar - 2017 - Bioethics 31 (2):128-135.
Developing an Evidence-Base to Guide Ethical Action in Global Challenges Research in Complex and Fragile Contexts: A Scoping Review of the Literature.Clara Calia, Cristóbal Guerra, Corinne Reid, Charles Marley, Paulina Barrera, Abdul-Gafar Tobi Oshodi & Lisa Boden - 2022 - Ethics and Social Welfare 16 (1):54-72.
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