Science and Engineering Ethics 27 (3):1-18 (2021)
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Big Data has amplified some challenges in the healthcare context. One significant challenge is how to use healthcare big data in ways that honor individual rights to informed consent or privacy. Careful analysis from diverse backgrounds will be vital in contributing ethical guidelines that can adequately address healthcare Big Data's growing complexities globally. Especially, the study argues that an under-explored African philosophy of Ubuntu can usefully influence big data practices in ways that address this challenge without undermining its benefits. Ubuntu emphasizes harmonious relationships. Harmonious relations entail identifying with one another and exhibiting solidarity to each other. One can identify or exhibit solidarity with others through psychological attitudes such as thinking of oneself as part of a “we” and acting in ways that will more likely improve the quality of life of others. The African relational philosophy of Ubuntu deserves to be given an audience not only for epistemic justice but also because the continued absence of African perspective in the discourse on ethical use of HBD science represents a missed opportunity to enrich ethical thinking about HBD from diverse backgrounds. Research is, however, required to provide greater specificity on how Ubuntu values may be integrated into HBD analytic techniques.
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DOI | 10.1007/s11948-021-00313-w |
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References found in this work BETA
The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts.Brent Daniel Mittelstadt & Luciano Floridi - 2016 - Science and Engineering Ethics 22 (2):303–341.
Toward an African Moral Theory.Thaddeus Metz - 2007 - Journal of Political Philosophy 15 (3):321–341.
Ancillary Care Obligations in Light of an African Bioethic: From Entrustment to Communion.Thaddeus Metz - 2017 - Theoretical Medicine and Bioethics 38 (2):111–126.
The African Ethic of Ubuntu/Botho: Implications for Research on Morality.Thaddeus Metz & Joseph B. R. Gaie - 2010 - Journal of Moral Education 39 (3):273-290.
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