In Emily Anderson (ed.), Ethical Issues in Stakeholder-Engaged Health Research. Springer (forthcoming)

Andrew Evans
University of Cincinnati
Angela Potochnik
University of Cincinnati
A wide variety of scientific research projects include public participation in roles going beyond the classic use of subjects in human subjects research. “Participatory research” is an umbrella term for such projects. In this chapter, we begin by surveying the variety of participatory research approaches across fields. We examine what goals participatory research projects seek to achieve, both of social and scientific value. Next, we apply this theoretical framework to challenges that participatory research faces. We then survey three typologies of participatory research projects, each of which can illuminate and guide decisions in project development. We end with a look at participatory research approaches in health contexts, applying the theoretical resources we introduced earlier in the chapter.
Keywords participatory research  citizen science  community-based participatory research  biomedical research
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Pedagogy of the Oppressed.Paulo Freire - 1970 - Bloomsbury Academic.
The Diverse Aims of Science.Angela Potochnik - 2015 - Studies in History and Philosophy of Science Part A 53:71-80.

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