Adapting ethical guidelines for adolescent health research to street-connected children and youth in low- and middle-income countries: a case study from western Kenya

BMC Medical Ethics 16 (1):1-11 (2015)
  Copy   BIBTEX

Abstract

BackgroundStreet-connected children and youth in low- and middle-income countries have multiple vulnerabilities in relation to participation in research. These require additional considerations that are responsive to their needs and the social, cultural, and economic context, while upholding core ethical principles of respect for persons, beneficence, and justice. The objective of this paper is to describe processes and outcomes of adapting ethical guidelines for SCCY’s specific vulnerabilities in LMIC.MethodsAs part of three interrelated research projects in western Kenya, we created procedures to address SCCY’s vulnerabilities related to research participation within the local context. These consisted of identifying ethical considerations and solutions in relation to community engagement, equitable recruitment, informed consent, vulnerability to coercion, and responsibility to report.ResultsSubstantial community engagement provided input on SCCY’s participation in research, recruitment, and consent processes. We designed an assent process to support SCCY to make an informed decision regarding their participation in the research that respected their autonomy and their right to dissent, while safeguarding them in situations where their capacity to make an informed decision was diminished. To address issues related to coercion and access to care, we worked to reduce the unequal power dynamic through street outreach, and provided access to care regardless of research participation.ConclusionsAlthough a vulnerable population, the specific vulnerabilities of SCCY can to some extent be managed using innovative procedures. Engaging SCCY in ethical research is a matter of justice and will assist in reducing inequities and advancing their health and human dignity

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 74,310

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Asking Practical Ethical Questions About Youth Participation.Kim Knowles-Yánez - 2009 - Les ateliers de l'éthique/The Ethics Forum 4 (1):97-104.

Analytics

Added to PP
2015-12-20

Downloads
27 (#427,599)

6 months
1 (#415,900)

Historical graph of downloads
How can I increase my downloads?