Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?
Journal of Medical Ethics 45 (8):504-507 (2019)
Abstract
This article investigates a high-profile and ongoing dilemma for healthcare professionals, namely whether the existence of a duty of care to genetic relatives of a patient is a help or a hindrance in deciding what to do in cases where a patient’s genetic information may have relevance to the health of the patient’s family members. The English case ABC v St George’s Healthcare NHS Trust and others considered if a duty of confidentiality owed to the patient and a putative duty of care to the patient’s close relatives could coexist in this context. This article examines whether embracing the concept of coexisting duties could enable HCPs to respect duties in line with their clinical judgement, thereby providing legal support and clarity to professionals to allow them to provide the best possible genetics service to both the patient and their family. We argue that these dual duties, framed as a novel, composite duty to consider the interests of genetic relatives, could allow HCPs to exercise and act on their professional judgements about the relative value of information to family members, without fears of liability for negligence or breach of confidence.DOI
10.1136/medethics-2018-105229
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Citations of this work
The Genetic Family as Patient?Bartha Maria Knoppers & Kristina Kekesi-Lafrance - 2020 - American Journal of Bioethics 20 (6):77-80.
From proband to provider: is there an obligation to inform genetic relatives of actionable risks discovered through direct-to-consumer genetic testing?Jordan A. Parsons & Philip E. Baker - 2022 - Journal of Medical Ethics 48 (3):205-212.
Healthcare professionals’ responsibility for informing relatives at risk of hereditary disease.Kalle Grill & Anna Rosén - 2021 - Journal of Medical Ethics 47 (12):e12-e12.
A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?Imke Christiaans, M. Corrette Ploem, Els L. M. Maeckelberghe & Lieke M. van den Heuvel - 2021 - BMC Medical Ethics 22 (1):1-7.
References found in this work
Genetic Privacy: A Challenge to Medico-Legal Norms.Graeme Laurie - 2002 - Cambridge University Press.
Recognizing the Right Not to Know: Conceptual, Professional, and Legal Implications.Graeme Laurie - 2014 - Journal of Law, Medicine and Ethics 42 (1):53-63.
Recognizing the Right Not to Know: Conceptual, Professional, and Legal Implications.Graeme Laurie - 2014 - Journal of Law, Medicine and Ethics 42 (1):53-63.