‘Is this knowledge mine and nobody else's? I don't feel that.’ Patient views about consent, confidentiality and information-sharing in genetic medicine: Table 1
Journal of Medical Ethics 42 (3):174-179 (2016)
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10.1136/medethics-2015-102781
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Citations of this work
Beyond individualism: Is there a place for relational autonomy in clinical practice and research?Edward S. Dove, Susan E. Kelly, Federica Lucivero, Mavis Machirori, Sandi Dheensa & Barbara Prainsack - 2017 - Clinical Ethics 12 (3):150-165.
Healthcare professionals’ and patients’ perspectives on consent to clinical genetic testing: moving towards a more relational approach.Samuel Gabrielle Natalie, Dheensa Sandi, Farsides Bobbie, Fenwick Angela & Lucassen Anneke - 2017 - BMC Medical Ethics 18 (1):47.
Health data research on sudden cardiac arrest: perspectives of survivors and their next-of-kin.Dick L. Willems, Hanno L. Tan, Marieke T. Blom, Rens Veeken & Marieke A. R. Bak - 2021 - BMC Medical Ethics 22 (1):1-15.
Genetic Privacy, Disease Prevention, and the Principle of Rescue.Madison K. Kilbride - 2018 - Hastings Center Report 48 (3):10-17.
References found in this work
The family covenant and genetic testing.David J. Doukas & Jessica W. Berg - 2001 - American Journal of Bioethics 1 (3):2 – 10.
Communicating genetic information in the family: the familial relationship as the forgotten factor.R. Gilbar - 2007 - Journal of Medical Ethics 33 (7):390-393.
Attitudes of physicians and patients towards disclosure of genetic information to spouse and first-degree relatives: a case study from Turkey.Aslihan Akpinar & Nermin Ersoy - 2014 - BMC Medical Ethics 15 (1):39.
Genetic testing and the family covenant.D. J. Doukas & J. W. Berg - 2001 - American Journal of Bioethics 1 (3):2-10.
Testing the limits of the ‘joint account’ model of genetic information: a legal thought experiment.Charles Foster, Jonathan Herring & Magnus Boyd - 2015 - Journal of Medical Ethics 41 (5):379-382.
