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‘Is this knowledge mine and nobody else's? I don't feel that.’ Patient views about consent, confidentiality and information-sharing in genetic medicine: Table 1
Journal of Medical Ethics 42 (3):174-179 (2016)
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Citations of this work
Beyond individualism: Is there a place for relational autonomy in clinical practice and research?Edward S. Dove, Susan E. Kelly, Federica Lucivero, Mavis Machirori, Sandi Dheensa & Barbara Prainsack - 2017 - Clinical Ethics 12 (3):150-165.
Healthcare professionals’ and patients’ perspectives on consent to clinical genetic testing: moving towards a more relational approach.Samuel Gabrielle Natalie, Dheensa Sandi, Farsides Bobbie, Fenwick Angela & Lucassen Anneke - 2017 - BMC Medical Ethics 18 (1):47.
Ethical preparedness in health research and care: the role of behavioural approaches.A. M. Lucassen, H. Carley, L. M. Ballard & G. Samuel - 2022 - BMC Medical Ethics 23 (1):1-13.
Health data research on sudden cardiac arrest: perspectives of survivors and their next-of-kin.Dick L. Willems, Hanno L. Tan, Marieke T. Blom, Rens Veeken & Marieke A. R. Bak - 2021 - BMC Medical Ethics 22 (1):1-15.
References found in this work
The family covenant and genetic testing.David J. Doukas & Jessica W. Berg - 2001 - American Journal of Bioethics 1 (3):2 – 10.
The Family Covenant and Genetic Testing.D. J. Doukas & J. W. Berg - 2001 - American Journal of Bioethics 1 (3):2-10.
Communicating genetic information in the family: the familial relationship as the forgotten factor.R. Gilbar - 2007 - Journal of Medical Ethics 33 (7):390-393.
Attitudes of physicians and patients towards disclosure of genetic information to spouse and first-degree relatives: a case study from Turkey.Aslihan Akpinar & Nermin Ersoy - 2014 - BMC Medical Ethics 15 (1):39.
Scaling ethics up and down: moral craft in clinical genetics and in global health research.Michael Parker - 2015 - Journal of Medical Ethics 41 (1):134-137.
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