Journal of Law, Medicine and Ethics 39 (s1):98-101 (2011)
Abstract |
The Michigan Department of Community Health stores almost 4 million dried blood spot specimens in the Michigan Neonatal Biobank. DBS are collected from newborns under a mandatory public health program to screen for serious conditions. At 24 to 36 hours of age, a few drops of blood are taken from the baby’s heel and placed on a filter paper card. The card is sent to the state public health laboratory for testing. After testing, MDCH retains the spots indefinitely for the personal use of the patient and also, pursuant to a 2000 law, for possible research.
|
Keywords | No keywords specified (fix it) |
Categories | (categorize this paper) |
DOI | 10.1111/j.1748-720X.2011.00577.x |
Options |
![]() ![]() ![]() ![]() |
Download options
References found in this work BETA
No references found.
Citations of this work BETA
Informed Consent, Body Property, and Self-Sovereignty.Radhika Rao - 2016 - Journal of Law, Medicine and Ethics 44 (3):437-444.
The Use of Newborn Screening Dried Blood Spots for Research: The Parental Perspective.Li-Ming Gong, Wen-Jun Tu, Jian He, Xiao-Dong Shi, Xin-Yu Wang & Ying Li - 2012 - Journal of Bioethical Inquiry 9 (2):189-193.
What Can Data Trusts for Health Research Learn From Participatory Governance in Biobanks?Richard Milne, Annie Sorbie & Mary Dixon-Woods - 2022 - Journal of Medical Ethics 48 (5):323-328.
Similar books and articles
A Model of Community Substituted Consent for Research on the Vulnerable.David C. Thomasma - 2000 - Medicine, Health Care and Philosophy 3 (1):47-57.
Justifying Community Benefit Requirements in International Research.Robert C. Hughes - 2014 - Bioethics 28 (8):397-404.
The Challenge of Measuring Community Values in Ways Appropriate for Setting Health Care Priorities.Peter A. Ubel - 1999 - Kennedy Institute of Ethics Journal 9 (3):263-284.
Protecting Communities in Health Research From Exploitation.Segun Gbadegesin & David Wendler - 2006 - Bioethics 20 (5):248-253.
Individual Risk and Community Benefit in International Research.Robert C. Hughes - 2012 - Journal of Medical Ethics 38 (10):626-629.
Exploratory Health Disparities Research: The Need to Provide a Tangible Benefit to Vulnerable Respondents.Christian Simon & Maghboeba Mosavel - 2010 - Ethics and Behavior 20 (1):1-9.
Assuring Adequate Protections in International Health Research: A Principled Justification and Practical Recommendations for the Role of Community Oversight.Sibusiso Sifunda David Buchanan, Shamagonam James Nasheen Naidoo & Priscilla Reddy - 2008 - Public Health Ethics 1 (3).
Paying for Medical Care: A Jewish View.Elliot N. Dorff - 1997 - Kennedy Institute of Ethics Journal 7 (1):15-30.
Research Involving Prisoners: Consensus and Controversies in International and European Regulations.Bernice S. Elger - 2008 - Bioethics 22 (4):224–238.
Religious Health Care as Community Benefit: Social Contract, Covenant, or Common Good?David M. Craig - 2008 - Kennedy Institute of Ethics Journal 18 (4):pp. 301-330.
Realizing Benefit Sharing – the Case of Post-Study Obligations.Doris Schroeder & Eugenijus Gefenas - 2012 - Bioethics 26 (6):305-314.
Community, Public Health and Resource Allocation.T. M. Wilkinson - 2010 - Public Health Ethics 3 (3):267-271.
Provision of Community-Wide Benefits in Public Health Intervention Research: The Experience of Investigators Conducting Research in the Community Setting in South Asia.Holly A. Taylor & Maria W. Merritt - 2012 - Developing World Bioethics 12 (3):157-163.
Analytics
Added to PP index
2011-02-11
Total views
7 ( #1,072,112 of 2,520,426 )
Recent downloads (6 months)
1 ( #405,718 of 2,520,426 )
2011-02-11
Total views
7 ( #1,072,112 of 2,520,426 )
Recent downloads (6 months)
1 ( #405,718 of 2,520,426 )
How can I increase my downloads?
Downloads