Hastings Center Report 47 (2):21-29 (2017)

Michael Stein
University of Chicago
As a 2006 Institute of Medicine report highlights, surprisingly little empirical attention has been paid to how prisoners arrive at decisions to participate in modern research. With our study, we aimed to fill this gap by identifying a more comprehensive range of factors as reported by prisoners themselves during semistructured interviews. Our participants described a diverse range of motives, both favoring and opposing their eventual decision to join. Many are well-recognized considerations among nonincarcerated clinical research participants, including a desire for various forms of personal benefit, altruism, and concern about study risks and inconveniences. However, a number of influences seem unique to prisoners. Participants did not report that they were not coerced into enrolling, and they have even been under pressure not to enroll. However, many sought to enroll in order to obtain access to better health care, raising a concern about whether they were unfairly exploited.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1002/hast.686
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 70,307
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

Payment for Research Participation: A Coercive Offer?A. Wertheimer & F. G. Miller - 2008 - Journal of Medical Ethics 34 (5):389-392.
Coercion.Scott Anderson - 2011 - Stanford Encyclopedia of Philosophy.

Add more references

Citations of this work BETA

Coercion and Access to Health Care.Keramet Reiter - 2017 - Hastings Center Report 47 (2):30-31.

Add more citations

Similar books and articles

Clinical Research Consultation: A Casebook.Marion Danis (ed.) - 2012 - Oxford University Press.
Informed Consent to HIV Cure Research.Danielle Bromwich & Joseph R. Millum - 2017 - Journal of Medical Ethics 43 (2):108-113.
Coercion and Access to Health Care.Keramet Reiter - 2017 - Hastings Center Report 47 (2):30-31.
The Right to Participate in High-Risk Research.David Shaw - 2014 - The Lancet 38:1009 – 1011.
Space for the Prisoner's Point of View.Laura Haupt - 2017 - Hastings Center Report 47 (2):2-2.


Added to PP index

Total views
21 ( #534,845 of 2,507,703 )

Recent downloads (6 months)
1 ( #416,820 of 2,507,703 )

How can I increase my downloads?


My notes