Ethical challenges in researching and telling the stories of recently deceased people

Research Ethics 17 (2):162-175 (2020)
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Abstract

This paper explores ethical challenges encountered when conducting research about, and telling, the stories of individuals who had died before the research began. Cases were explored where individuals who lived alone had died alone at home and where their bodies had been undiscovered for an extended period. The ethical review process had not had anything significant to say about the deceased ‘participants’. As social researchers we considered whether it was ethical to involve deceased people in research when they had no opportunity to decline, and we were concerned about how to report such research. The idea that the dead can be harmed did not help our decision-making processes, but the notion of the dead having limited human rights conferred upon them was useful and aided us in clarifying how to conduct our research and disseminate our findings.

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References found in this work

Can we be harmed after we are dead?David Papineau - 2012 - Journal of Evaluation in Clinical Practice 18 (5):1091-1094.
The Myth of Posthumous Harm.James Stacey Taylor - 2005 - American Philosophical Quarterly 42 (4):311 - 322.
Consent and the Use of the Bodies of the Dead.T. M. Wilkinson - 2012 - Journal of Medicine and Philosophy 37 (5):445-463.
Last rights: The ethics of research on the dead.T. M. Wilkinson - 2002 - Journal of Applied Philosophy 19 (1):31–41.

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