What is a Medical Information Commons?

Journal of Law, Medicine and Ethics 47 (1):41-50 (2019)
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Abstract

A 2011 National Academies of Sciences report called for an “Information Commons” and a “Knowledge Network” to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.

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Author's Profile

Peter Zuk
Center for Bioethics, Harvard Medical School