Risk Disclosure and the Recruitment of Oocyte Donors: Are Advertisers Telling the Full Story?
Journal of Law, Medicine and Ethics 42 (2):232-243 (2014)
Abstract
This study analyzes 435 oocyte donor recruitment advertisements to assess whether entities recruiting donors of oocytes to be used for in vitro fertilization (IVF) procedures include a disclosure of risks associated with the donation process in their advertisements. Such disclosure is required by the self-regulatory guidelines of the American Society for Reproductive Medicine (ASRM) and by law in California for advertisements placed in the state. We find very low rates of risk disclosure across entity types and regulatory regimes, although risk disclosure is more common in advertisements placed by entities subject to ASRM's self-regulatory guidelines. Advertisements placed in California are more likely to include risk disclosure, but disclosure rates are still quite low. California-based entities advertising outside the state are more likely to include risk disclosure than non-California entities, suggesting that California's law may have a modest “halo effect.” Our results suggest that there is a significant ethical and policy problem with the status quo in light of the known and unknown risks of oocyte donation and the importance of risk disclosure to informed consent in the context of oocyte donationAuthor Profiles
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Citations of this work
Buying and selling human eggs: infertility providers’ ethical and other concerns regarding egg donor agencies.Robert Klitzman - 2016 - BMC Medical Ethics 17 (1):71.
Conflicts of Interest and Effective Oversight of Assisted Reproduction Using Donated Oocytes.Valarie K. Blake, Michelle L. McGowan & Aaron D. Levine - 2015 - Journal of Law, Medicine and Ethics 43 (2):410-424.
References found in this work
Self-Regulation, Compensation, and the Ethical Recruitment of Oocyte Donors.Aaron D. Levine - 2010 - Hastings Center Report 40 (2):25-36.
Risk Information Provided to Prospective Oocyte Donors in a Preliminary Phone Call.Andrea D. Gurmankin - 2001 - American Journal of Bioethics 1 (4):3 – 13.
Contested commodities at both ends of life: Buying and selling gametes, embryos, and body tissues.Suzanne Holland - 2001 - Kennedy Institute of Ethics Journal 11 (3):263-284.
Adverstising for Clinical Research.Franklin G. Miller & Andrew F. Short - 1999 - IRB: Ethics & Human Research 21 (5):1.
Disclosure of information to potential subjects on research recruitment web sites.R. Klitzman, I. Albala, J. Siragusa, J. Patel & P. S. Appelbaum - 2007 - IRB: Ethics & Human Research 30 (1):15-20.