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  1. Patient Perceptions on the Advancement of Noninvasive Prenatal Testing for Sickle Cell Disease among Black Women in the United States.Shameka P. Thomas, Faith E. Fletcher, Rachele Willard, Tiara Monet Ranson & Vence L. Bonham - forthcoming - AJOB Empirical Bioethics.
    Background Noninvasive prenatal testing (NIPT) designed to screen for fetal genetic conditions, is increasingly being implemented as a part of routine prenatal care screening in the United States (US). However, these advances in reproductive genetic technology necessitate empirical research on the ethical and social implications of NIPT among populations underrepresented in genetic research, particularly Black women with sickle cell disease (SCD).Methods Forty (N = 40) semi-structured interviews were conducted virtually with Black women in the US (19 participants with SCD; 21 (...)
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  • Black Bioethics in the Age of Black Lives Matter.Keisha Ray, Faith E. Fletcher, Daphne O. Martschenko & Jennifer E. James - 2023 - Journal of Medical Humanities 44 (2):251-267.
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  • The Public Performativity of Trust.Melissa Creary & Lynette Hammond Gerido - 2023 - Hastings Center Report 53 (S2):76-85.
    Building trust between academic medical centers and certain communities they depend on in the research process is hard, particularly when those communities consist of minoritized or historically marginalized populations. Some believe that engagement activities like the creation of advisory boards, town halls, or a research workforce that looks more like community members will establish or reestablish trust between academic medical centers and racialized communities. However, without systematic approaches to dismantle racism, those well‐intended actions become public performativity, and trust building will (...)
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