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  1. The role of bioethics services in paediatric intensive care units: a qualitative descriptive study.Denise Alexander, Mary Quirke, Jo Greene, Lorna Cassidy, Carol Hilliard & Maria Brenner - 2024 - BMC Medical Ethics 25 (1):1-12.
    Background There is considerable variation in the functionality of bioethical services in different institutions and countries for children in hospital, despite new challenges due to increasing technology supports for children with serious illness and medical complexity. We aimed to understand how bioethics services address bioethical concerns that are increasingly encountered in paediatric intensive care. Methods A qualitative descriptive design was used to describe clinician’s perspectives on the functionality of clinical bioethics services for paediatric intensive care units. Clinicians who were members (...)
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  • Moral distress and positive experiences of ICU staff during the COVID-19 pandemic: lessons learned.Mark L. van Zuylen, Janine C. de Snoo-Trimp, Suzanne Metselaar, Dave A. Dongelmans & Bert Molewijk - 2023 - BMC Medical Ethics 24 (1):1-17.
    Background The COVID-19 pandemic causes moral challenges and moral distress for healthcare professionals and, due to an increased work load, reduces time and opportunities for clinical ethics support services. Nevertheless, healthcare professionals could also identify essential elements to maintain or change in the future, as moral distress and moral challenges can indicate opportunities to strengthen moral resilience of healthcare professionals and organisations. This study describes 1) the experienced moral distress, challenges and ethical climate concerning end-of-life care of Intensive Care Unit (...)
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  • In the name of the family? Against parents’ refusal to disclose prognostic information to children.Michael Rost & Emilian Mihailov - 2021 - Medicine, Health Care and Philosophy 24 (3):421-432.
    Parents frequently attempt to shield their children from distressing prognostic information. Pediatric oncology providers sometimes follow parental request for non-disclosure of prognostic information to children, invoking what we call the stability of the family argument. They believe that if they inform the child about terminal prognosis despite parental wishes, cohesion and family structure will be severely hampered. In this paper, we argue against parental request for non-disclosure. Firstly, we present the stability of the family argument in more detail. We, then, (...)
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  • Ethical challenges as perceived by nurses in pediatric oncology units.Fateme Mohammadi, Zeinab Naderi, Leila Nikrouz, Khodayar Oshvandi, Seyedeh Zahra Masoumi, Parisa Sabetsarvestani & Mostafa Bijani - forthcoming - Nursing Ethics.
    Background Providing care to children with cancer is one of the most challenging areas of ethical care for nurses. Few studies have addressed nurses’ perception of the barriers to giving ethical care in oncology departments. Thus, it is essential that the ethical challenges in caregiving as perceived by oncology nurses be investigated. Objective The present study was conducted to investigate the ethical challenges as perceived by nurses in pediatric oncology units in the south of Iran. Research design The present study (...)
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