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  1. Quality, Costs, Privacy and Electronic Medical Data.David W. Bates - 1997 - Journal of Law, Medicine and Ethics 25 (2-3):111-112.
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  • Medical Record Confidentiality and Data Collection: Current Dilemmas.Beverly Woodward - 1997 - Journal of Law, Medicine and Ethics 25 (2-3):88-97.
    All scientific activity involves some method of observation and some method of recording what is observed. These activities can be carried out in ways that involve little interaction between subject and object, as is the case when a telescope observes a far-away star. At the other end of the scale are experiments in modern high energy physics in which there is little distinction between the observer and the observed, and the process of observation materially affects the data that are recorded. (...)
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  • Medical Record Confidentiality and Data Collection: Current Dilemmas.Beverly Woodward - 1997 - Journal of Law, Medicine and Ethics 25 (2-3):88-97.
    All scientific activity involves some method of observation and some method of recording what is observed. These activities can be carried out in ways that involve little interaction between subject and object, as is the case when a telescope observes a far-away star. At the other end of the scale are experiments in modern high energy physics in which there is little distinction between the observer and the observed, and the process of observation materially affects the data that are recorded. (...)
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  • Data privacy protection in scientific publications: process implementation at a pharmaceutical company.Friedrich Maritsch, Ingeborg Cil, Colin McKinnon, Jesse Potash, Nicole Baumgartner, Valérie Philippon & Borislava G. Pavlova - 2022 - BMC Medical Ethics 23 (1):1-10.
    Background Sharing anonymized/de-identified clinical trial data and publishing research outcomes in scientific journals, or presenting them at conferences, is key to data-driven scientific exchange. However, when data from scientific publications are linked to other publicly available personal information, the risk of reidentification of trial participants increases, raising privacy concerns. Therefore, we defined a set of criteria allowing us to determine and minimize the risk of data reidentification. We also implemented a review process at Takeda for clinical publications prior to submission (...)
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  • Cyberbanks and Other Virtual Research Repositories.Mary Anderlik Majumder - 2005 - Journal of Law, Medicine and Ethics 33 (1):31-39.
    Few things seem more a part of the material world than biological specimens. Yet the processes by which collections of specimens are assembled, translated into information, combined with more information, and distributed are taking research repositories into the virtual realm.The term “virtual” has a number of meanings, and so a research repository can qualify as virtual in a variety of ways. The term would seem to apply, for example, to constructing a repository by forming a network among institutions; using the (...)
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  • Cyberbanks and other Virtual Research Repositories.Mary Anderlik Majumder - 2005 - Journal of Law, Medicine and Ethics 33 (1):31-39.
    Few things seem more a part of the material world than biological specimens. Yet the processes by which collections of specimens are assembled, translated into information, combined with more information, and distributed are taking research repositories into the virtual realm.The term “virtual” has a number of meanings, and so a research repository can qualify as virtual in a variety of ways. The term would seem to apply, for example, to constructing a repository by forming a network among institutions; using the (...)
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  • Responses to Catastrophic AGI Risk: A Survey.Kaj Sotala & Roman V. Yampolskiy - 2015 - Physica Scripta 90.
    Many researchers have argued that humanity will create artificial general intelligence (AGI) within the next twenty to one hundred years. It has been suggested that AGI may inflict serious damage to human well-being on a global scale ('catastrophic risk'). After summarizing the arguments for why AGI may pose such a risk, we review the fieldʼs proposed responses to AGI risk. We consider societal proposals, proposals for external constraints on AGI behaviors and proposals for creating AGIs that are safe due to (...)
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  • Machine Decisions and Human Consequences.Teresa Scantamburlo, Andrew Charlesworth & Nello Cristianini - 2019 - In Karen Yeung & Martin Lodge (eds.), Algorithmic Regulation. Oxford: Oxford University Press.
    As we increasingly delegate decision-making to algorithms, whether directly or indirectly, important questions emerge in circumstances where those decisions have direct consequences for individual rights and personal opportunities, as well as for the collective good. A key problem for policymakers is that the social implications of these new methods can only be grasped if there is an adequate comprehension of their general technical underpinnings. The discussion here focuses primarily on the case of enforcement decisions in the criminal justice system, but (...)
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