- A qualitative study using traditional community assemblies to investigate community perspectives on informed consent and research participation in western Kenya.Rachel Vreeman, Eunice Kamaara, Allan Kamanda, David Ayuku, Winstone Nyandiko, Lukoye Atwoli, Samuel Ayaya, Peter Gisore, Michael Scanlon & Paula Braitstein - 2012 - BMC Medical Ethics 13 (1):23-.details
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Human Genetics Studies: The Case for Group Rights.Laura S. Underkuffler - 2007 - Journal of Law, Medicine and Ethics 35 (3):383-395.details
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Human Genetics Studies: The Case for Group Rights.Laura S. Underkuffler - 2007 - Journal of Law, Medicine and Ethics 35 (3):383-395.details
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Clinical utility and full disclosure of genetic results to research participants.Richard R. Sharp & Morris W. Foster - 2006 - American Journal of Bioethics 6 (6):42 – 44.details
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The meaning of community consultation.Terri A. Schmidt, Nicole M. DeIorio & Katie B. McClure - 2006 - American Journal of Bioethics 6 (3):30 – 32.details
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Research with groups: Group rights, group consent, and collaborative research: Commentary on protecting the navajo people through tribal regulation of research.Brian Schrag - 2006 - Science and Engineering Ethics 12 (3):511-521.details
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The Role of IRBs in Research Involving Commerical Biobanks.Mark A. Rothstein - 2002 - Journal of Law, Medicine and Ethics 30 (1):105-108.details
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What Should Engagement in Health Research Look Like? Perspectives from People with Lived Experience, Members of the Public, and Engagement Managers.Bridget Pratt - 2022 - Cambridge Quarterly of Healthcare Ethics 31 (2):263-274.details
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Exploitation and community engagement: Can Community Advisory Boards successfully assume a role minimising exploitation in international research?Bridget Pratt, Khin Maung Lwin, Deborah Zion, Francois Nosten, Bebe Loff & Phaik Yeong Cheah - 2013 - Developing World Bioethics 15 (1):18-26.details
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Achieving inclusive research priority-setting: what do people with lived experience and the public think is essential?Bridget Pratt - 2021 - BMC Medical Ethics 22 (1):1-14.details
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The routinisation of genomics and genetics: implications for ethical practices.M. W. Foster, C. D. M. Royal & R. R. Sharp - 2006 - Journal of Medical Ethics 32 (11):635-638.details
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Population Genomics and Research Ethics with Socially Identifable Groups.Joan L. McGregor - 2007 - Journal of Law, Medicine and Ethics 35 (3):356-370.details
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Population Genomics and Research Ethics with Socially Identifiable Groups.Joan L. McGregor - 2007 - Journal of Law, Medicine and Ethics 35 (3):356-370.details
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Working with Concepts: The Role of Community in International Collaborative Biomedical Research.V. M. Marsh, D. K. Kamuya, M. J. Parker & C. S. Molyneux - 2011 - Public Health Ethics 4 (1):26-39.details
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Protecting communities in biomedical research.Patricia A. Marshall & Jessica W. Berg - 2006 - American Journal of Bioethics 6 (3):28 – 30.details
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Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya.V. M. Marsh, D. M. Kamuya, A. M. Mlamba, T. N. Williams & S. S. Molyneux - 2010 - BMC Medical Ethics 11 (1):13-13.details
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Ethics in practice: the state of the debate on promoting the social value of global health research in resource poor settings particularly Africa.Geoffrey M. Lairumbi, Michael Parker, Raymond Fitzpatrick & Michael C. English - 2011 - BMC Medical Ethics 12 (1):22.details
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Protecting groups from genetic research.Daniel Hausman - 2008 - Bioethics 22 (3):157–165.details
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Community involvement in biomedical research conducted in the global health context; what can be done to make it really matter?Federica Fregonese - 2018 - BMC Medical Ethics 19 (S1).details
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Obligations in offering to disclose genetic research results.Conrad V. Fernandez & Charles Weijer - 2006 - American Journal of Bioethics 6 (6):44 – 46.details
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Genetic research & communal narratives.Dena S. Davis - 2004 - Hastings Center Report 34 (4):40-49.details
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The Complex Relationship of Genetics, Groups, and Health: What It Means for Public Health.Ellen Wright Clayton - 2002 - Journal of Law, Medicine and Ethics 30 (2):290-297.details
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The Complex Relationship of Genetics, Groups, and Health: What it Means for Public Health.Ellen Wright Clayton - 2002 - Journal of Law, Medicine and Ethics 30 (2):290-297.details
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Gene by Environment Research to Prevent Externalizing Problem Behavior: Ethical Questions Raised from a Public Healthcare Perspective.Rabia R. Chhangur, Joyce Weeland, Walter Matthys & Geertjan Overbeek - 2015 - Public Health Ethics 8 (3):295-304.details
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Consideration and Disclosure of Group Risks in Genomics and Other Data-Centric Research: Does the Common Rule Need Revision?Carolyn Riley Chapman, Gwendolyn P. Quinn, Heini M. Natri, Courtney Berrios, Patrick Dwyer, Kellie Owens, Síofra Heraty & Arthur L. Caplan - forthcoming - American Journal of Bioethics:1-14.details
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Exploring researchers’ experiences of working with a researcher-driven, population-specific community advisory board in a South African schizophrenia genomics study.Megan M. Campbell, Ezra Susser, Jantina de Vries, Adam Baldinger, Goodman Sibeko, Michael M. Mndini, Sibonile G. Mqulwana, Odwa A. Ntola, Raj S. Ramesar & Dan J. Stein - 2015 - BMC Medical Ethics 16 (1):1-9.details
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The informed consent aftermath of the genetic revolution. An Italian example of implementation.Federica Artizzu - 2008 - Medicine, Health Care and Philosophy 11 (2):181-190.details
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