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  1. Perceptions of ‘Precision’ and ‘Personalised’ Medicine in Singapore and Associated Ethical Issues.Serene Ong, Jeffrey Ling, Angela Ballantyne, Tamra Lysaght & Vicki Xafis - 2021 - Asian Bioethics Review 13 (2):179-194.
    Governments are investing in precision medicine with the aim of improving healthcare through the use of genomic analyses and data analytics to develop tailored treatment approaches for individual patients. The success of PM is contingent upon clear public communications that engender trust and secure the social licence to collect and share large population-wide data sets because specific consent for each data re-use is impractical. Variation in the terminology used by different programmes used to describe PM may hinder clear communication and (...)
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  • “Who is Watching the Watchdog?”: Ethical Perspectives of Sharing Health-Related Data for Precision Medicine in Singapore.Tamra Lysaght, Angela Ballantyne, Vicki Xafis, Serene Ong, Gerald Owen Schaefer, Jeffrey Min Than Ling, Ainsley J. Newson, Ing Wei Khor & E. Shyong Tai - 2020 - BMC Medical Ethics 21 (1):1-11.
    Background We aimed to examine the ethical concerns Singaporeans have about sharing health-data for precision medicine and identify suggestions for governance strategies. Just as Asian genomes are under-represented in PM, the views of Asian populations about the risks and benefits of data sharing are under-represented in prior attitudinal research. Methods We conducted seven focus groups with 62 participants in Singapore from May to July 2019. They were conducted in three languages and analysed with qualitative content and thematic analysis. Results Four (...)
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  • Religious Perspectives on Precision Medicine in Singapore.Tamra Lysaght, Zhixia Tan, You Guang Shi, Swami Samachittananda, Sarabjeet Singh, Roland Chia, Raza Zaidi, Malminderjit Singh, Hung Yong Tay, Chitra Sankaran, Serene Ai Kiang Ong, Angela Ballantyne & Hui Jin Toh - 2021 - Asian Bioethics Review 13 (4):473-483.
    Precision medicine aims to revolutionise healthcare, but little is known about the role religion and spirituality might play in the ethical discourse about PM. This Perspective reports the outcomes of a knowledge exchange fora with religious authorities in Singapore about data sharing for PM. While the exchange did not identify any foundational religious objections to PM, ethical concerns were raised about the possibility for private industry to profiteer from social resources and the potential for genetic discrimination by private health insurers. (...)
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  • Delivering a Practical Framework for Ethical Decision-Making Involving Big Data in Health and Research.Graeme T. Laurie & E. Shyong Tai - 2019 - Asian Bioethics Review 11 (3):223-225.
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  • Sharing Precision Medicine Data with Private Industry: Outcomes of a Citizens’ Jury in Singapore.Annette Braunack-Mayer, Chris Degeling, Stacy Carter, Ainsley J. Newson, E. Shyong Tai, Vicki Xafis, G. Owen Schaefer, Andrew Lau, Serene Ong, Hui Jin Toh, Tamra Lysaght & Angela Ballantyne - 2022 - Big Data and Society 9 (1).
    Precision medicine is an emerging approach to treatment and disease prevention that relies on linkages between very large datasets of health information that is shared amongst researchers and health professionals. While studies suggest broad support for sharing precision medicine data with researchers at publicly funded institutions, there is reluctance to share health information with private industry for research and development. As the private sector is likely to play an important role in generating public benefits from precision medicine initiatives, it is (...)
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  • An Ethics Framework for Big Data in Health and Research.Vicki Xafis, G. Owen Schaefer, Markus K. Labude, Iain Brassington, Angela Ballantyne, Hannah Yeefen Lim, Wendy Lipworth, Tamra Lysaght, Cameron Stewart, Shirley Sun, Graeme T. Laurie & E. Shyong Tai - 2019 - Asian Bioethics Review 11 (3):227-254.
    Ethical decision-making frameworks assist in identifying the issues at stake in a particular setting and thinking through, in a methodical manner, the ethical issues that require consideration as well as the values that need to be considered and promoted. Decisions made about the use, sharing, and re-use of big data are complex and laden with values. This paper sets out an Ethics Framework for Big Data in Health and Research developed by a working group convened by the Science, Health and (...)
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