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  1. Genetic Testing and the Future of Disability Insurance: Ethics, Law & Policy.Susan M. Wolf & Jeffrey P. Kahn - 2007 - Journal of Law, Medicine and Ethics 35 (s2):6-32.
    Predictive genetic testing poses fundamental questions for disability insurance, a crucial resource funding basic needs when disability prevents income from work. This article, from an NIH-funded project, presents the first indepth analysis of the challenging issues: Should disability insurers be permitted to consider genetics and exclude predicted disability? May disabilities with a recognized genetic basis be excluded from coverage as pre-existing conditions? How can we assure that private insurers writing individual and group policies, employers, and public insurers deal competently and (...)
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  • Genetic Testing and the Future of Disability Insurance: Ethics, Law & Policy.Susan M. Wolf & Jeffrey P. Kahn - 2007 - Journal of Law, Medicine and Ethics 35 (S2):6-32.
    Genetic testing poses fundamental questions for insurance. Testing can predict a low probability of future illness and disability, which can help promote the insurability of individuals with a family history of genetic risk, but it can also invite insurers to reject applicants, increase premiums, exclude people with certain illnesses and disabilities, and otherwise adjust the underwriting processes for individuals with certain genotypes. In the workplace, these issues may cause employers who offer or pay for insurance to alter their hiring behavior, (...)
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  • Genetic Exceptionalism and Legislative Pragmatism.Mark A. Rothstein - 2007 - Journal of Law, Medicine and Ethics 35 (s2):59-65.
    Genetic-specific nondiscrimination laws have been enacted in most states, but the laws are ineffective and increase the stigma of genetic conditions. Whether these laws are better than no new legislation depends on their consequences and a recognition of their limitations.
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  • Genetic Exceptionalism and Legislative Pragmatism.Mark A. Rothstein - 2007 - Journal of Law, Medicine and Ethics 35 (S2):59-65.
    One of the most important and contentious policy issues surrounding genetics is whether genetic information should be treated separately from other medical information. The view that genetics raises distinct issues is what Thomas Murray labeled “genetic exceptionalism,” borrowing from the earlier term “HIV exceptional-ism.” The issue of whether the use of genetic information should be addressed separately from other health information is not merely an academic concern, however. Since the Human Genome Project began in 1990, nearly every state has enacted (...)
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  • Expanding the Ethical Analysis of Biobanks.Mark A. Rothstein - 2005 - Journal of Law, Medicine and Ethics 33 (1):89-101.
    Biobanks are repositories of human biological materials collected for biomedical research. There are over 300 million stored specimens in the United States, and the number grows by 20 million per year. In the post-genome world of high throughput gene sequencing and computational biology, biobanks hold the promise of facilitating large-scale research studies. New organizational and operational models of research repositories also raise complex issues of big science, big business, and big ethical concerns.
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  • Expanding the Ethical Analysis of Biobanks.Mark A. Rothstein - 2005 - Journal of Law, Medicine and Ethics 33 (1):89-101.
    Biobanks are repositories of human biological materials collected for biomedical research. There are over 300 million stored specimens in the United States, and the number grows by 20 million per year. In the post-genome world of high throughput gene sequencing and computational biology, biobanks hold the promise of facilitating large-scale research studies. New organizational and operational models of research repositories also raise complex issues of big science, big business, and big ethical concerns.
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