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Bioethics and activism: A natural fit?

Bioethics 33 (8):881-889 (2019)

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  1. Pursuing impact in research: towards an ethical approach.Inger Lise Teig, Michael Dunn, Angeliki Kerasidou & Kristine Bærøe - 2022 - BMC Medical Ethics 23 (1):1-9.
    BackgroundResearch proactively and deliberately aims to bring about specific changes to how societies function and individual lives fare. However, in the ever-expanding field of ethical regulations and guidance for researchers, one ethical consideration seems to have passed under the radar: How should researchers act when pursuing actual, societal changes based on their academic work?Main textWhen researchers engage in the process of bringing about societal impact to tackle local or global challenges important concerns arise: cultural, social and political values and institutions (...)
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  • How Disability Activism Advances Disability Bioethics.Joseph A. Stramondo - 2022 - Ethical Theory and Moral Practice 25 (2):335-349.
    In this paper, I argue that, even when disability rights activists are most clearly acting as activists, they can advance the scholarly activity of disability bioethics. In particular, I will argue that even engaging in non-violent direct action, including civil disobedience, is an important way in which disability rights activists directly support the efforts of disability bioethics scholars. I will begin by drawing upon Hilde Lindemann’s work on relational narrative identity to describe how certain damaging master narratives about disability hinder (...)
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  • Kingdoms, priests and handmaidens: bioethics and its culture.Stephen Richards - 2022 - The New Bioethics 28 (2):152-167.
    Central to this essay is the understanding that varied communities may have an inherent and unrecognised culture of their own and this culture may be detrimental to their core. Bioethics constitutes one such community and is embedded in norms and values comprising its own culture. I use exclusion of religion or simply ‘irreligion’ as an example of a cultural element that may be established and so shape the culture of bioethics. Irreligious bioethics includes both overt religious preclusion and the more (...)
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  • A Review of Altered Inheritance: CRISPR and the Ethics of Human Genome Editing by Françoise Baylis.Samantha Noll - 2021 - International Journal of Feminist Approaches to Bioethics 14 (1):168-171.
    Altered Inheritance is essential reading for anyone interested in genome editing and its ethical and social implications. Current genome editing technologies are rapidly making science fiction a reality. Indeed, it is a marvelous time for genetics, largely due to CRISPR-Cas tools being adopted in research and commercial sectors. While scientists were able to alter DNA for over thirty years, CRISPR offers faster, cheaper, and more accurate methods to remove, add, or alter genes. Applications abound, with researchers working to develop therapies (...)
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  • Implementation Science and Bioethics: Lessons From European Empirical Bioethics Research?Jonathan Ives, Giles Birchley & Richard Huxtable - 2020 - American Journal of Bioethics 20 (4):80-82.
    Volume 20, Issue 4, May 2020, Page 80-82.
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  • Bioethics and activism.Heather Draper, Greg Moorlock, Wendy Rogers & Jackie Leach Scully - 2019 - Bioethics 33 (8):853-856.
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  • Can bioethics be an honest way of making a living? A reflection on normativity, governance and expertise.Silvia Camporesi & Giulia Cavaliere - 2021 - Journal of Medical Ethics 47 (3):159-163.
    The authority of bioethics as a field of inquiry and of bioethicists as scholars with a distinctive expertise is being questioned on various fronts. Sarah Franklin’s 2019 Nature commentary ‘Ethical research – the long and bumpy road from shirked to shared’ is the latest example. In this paper, we respond to these challenges by focusing on two key issues. First, we discuss the theory and practice of bioethics. We argue that both of these endeavours are fundamental components of this field (...)
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