- Ethical implications of blockchain technology in biomedical research.Giovanni Rubeis - forthcoming - Ethik in der Medizin:1-14.details
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How to Design Consent for Health Data Research? An Analysis of Arguments of Solidarity.Svenja Wiertz - 2023 - Public Health Ethics 16 (3):261-270.details
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Evaluating models of consent in changing health research environments.Svenja Wiertz & Joachim Boldt - 2022 - Medicine, Health Care and Philosophy 25 (2):269-280.details
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Die zeitliche Dimension des Broad Consent.Svenja Wiertz - 2022 - Ethik in der Medizin 34 (4):645-667.details
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The temporal dimension of broad consent.Svenja Wiertz - 2022 - Ethik in der Medizin 34 (4):645-667.details
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Data Medicine: ‘Broad’ or ‘Dynamic’ Consent?Henri-Corto Stoeklé, Elisabeth Hulier-Ammar & Christian Hervé - 2022 - Public Health Ethics 15 (2):181-185.details
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Participant recall and understandings of information on biobanking and future genomic research: experiences from a multi-disease community-based health screening and biobank platform in rural South Africa.Janet Seeley, Emily B. Wong, Mark J. Siedner, Olivier Koole, Dickman Gareta, Resign Gunda, Dumsani Gumede, Nothando Ngwenya & Manono Luthuli - 2022 - BMC Medical Ethics 23 (1):1-11.details
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Stakeholder views on informed consent models for future use of biological samples in Malawi and South Africa.Stuart Rennie, Walter Jaoko & Francis Masiye - 2023 - BMC Medical Ethics 24 (1):1-10.details
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Can Blockchain Solve the Dilemma in the Ethics of Genomic Biobanks?Valérie Racine - 2021 - Science and Engineering Ethics 27 (3):1-14.details
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Opinions and attitudes of research ethics committees in Arab countries in the Middle East and North African region toward ethical issues involving biobank research.Zeinab Mohammed, Fatma Abdelgawad, Mamoun Ahram, Maha E. Ibrahim, Alya Elgamri, Ehsan Gamel, Latifa Adarmouch, Karima El Rhazi, Samar Abd ElHafeez & Henry Silverman - 2024 - Research Ethics 20 (1):1-18.details
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Biobanking and risk assessment: a comprehensive typology of risks for an adaptive risk governance.Kaya Akyüz, Olga Tzortzatou, Łukasz Kozera, Melanie Goisauf, Signe Mezinska, Gauthier Chassang & Michaela Th Mayrhofer - 2021 - Life Sciences, Society and Policy 17 (1):1-28.details
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Broad consent for biobank research in South Africa - Towards an enabling ethico-legal framework.Mantombi Maseme, Jillian Gardner & Safia Mahomed - 2024 - Global Bioethics 35 (1).details
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Towards a Design Toolkit of Informed Consent Models Across Fields: A Systematic Review.Iris Loosman & Philip J. Nickel - 2022 - Science and Engineering Ethics 28 (5):1-19.details
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Organoid Biobanking, Autonomy and the Limits of Consent.Jonathan Lewis & Søren Holm - 2022 - Bioethics 36 (7):742-756.details
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Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review.Ah Ra Lee, Dongjun Koo, Il Kon Kim, Eunjoo Lee, Hyun Ho Kim, Sooyoung Yoo, Jeong-Hyun Kim, Eun Kyung Choi & Ho-Young Lee - 2023 - BMC Medical Ethics 24 (1):1-12.details
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A framework for ethics review of applications to store, reuse and share tissue samples.Ian Kerridge, Cameron Stewart, Wendy Lipworth & Shih-Ning Then - 2021 - Monash Bioethics Review 39 (1):115-124.details
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Controversies between regulations of research ethics and protection of personal data: informed consent at a cross-road.Eugenijus Gefenas, J. Lekstutiene, V. Lukaseviciene, M. Hartlev, M. Mourby & K. Ó Cathaoir - 2021 - Medicine, Health Care and Philosophy 25 (1):23-30.details
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Better governance starts with better words: why responsible human tissue research demands a change of language.Annelien L. Bredenoord, Sarah N. Boers, Karin R. Jongsma & Michael A. Lensink - 2022 - BMC Medical Ethics 23 (1):1-10.details
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