- The challenge of community engagement and informed consent in rural Zambia: an example from a pilot study.Joseph Mumba Zulu, Ingvild Fossgard Sandøy, Karen Marie Moland, Patrick Musonda, Ecloss Munsaka & Astrid Blystad - 2019 - BMC Medical Ethics 20 (1):45.details
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Ethical and legal implications of whole genome and whole exome sequencing in African populations.Galen E. B. Wright, Pieter G. J. Koornhof, Adebowale A. Adeyemo & Nicki Tiffin - 2013 - BMC Medical Ethics 14 (1):21.details
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A qualitative study using traditional community assemblies to investigate community perspectives on informed consent and research participation in western Kenya.Rachel Vreeman, Eunice Kamaara, Allan Kamanda, David Ayuku, Winstone Nyandiko, Lukoye Atwoli, Samuel Ayaya, Peter Gisore, Michael Scanlon & Paula Braitstein - 2012 - BMC Medical Ethics 13 (1):23-.details
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Understandings of genomic research in developing countries: a qualitative study of the views of MalariaGEN participants in Mali.Karim Traore, Susan Bull, Alassane Niare, Salimata Konate, Mahamadou A. Thera, Dominic Kwiatkowski, Michael Parker & Ogobara K. Doumbo - 2015 - BMC Medical Ethics 16 (1):1-10.details
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Community engagement strategies for genomic studies in Africa: a review of the literature. [REVIEW]Paulina Tindana, Jantina de Vries, Megan Campbell, Katherine Littler, Janet Seeley, Patricia Marshall, Jennifer Troyer, Morisola Ogundipe, Vincent Pius Alibu, Aminu Yakubu & Michael Parker - 2015 - BMC Medical Ethics 16 (1):24.details
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Enhancing the ethical conduct of a longitudinal cluster-randomized trial of psychosocial stimulation intervention for children with complicated severe acute malnutrition through Rapid Ethical Assessment: a qualitative study.Tesfalem T. Tessema, Andamlak G. Alamdo, Eyoel B. Mekonnen, Fanna A. Debele, Juhar A. Bamud, Teklu G. Abessa & Tefera Belachew Lema - 2021 - BMC Medical Ethics 22 (1):1-13.details
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Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study.Nabukenya Sylvia, Ochieng Joseph, Kaawa-Mafigiri David, Munabi Ian, Nakigudde Janet, Nakwagala Frederick Nelson, Barugahare John, Kwagala Betty, Ibingira Charles, Twimwijukye Adelline, Sewankambo Nelson & Mwaka Erisa Sabakaki - 2022 - Research Ethics 18 (3):193-209.details
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Rules of engagement: perspectives on stakeholder engagement for genomic biobanking research in South Africa.Ciara Staunton, Paulina Tindana, Melany Hendricks & Keymanthri Moodley - 2018 - BMC Medical Ethics 19 (1):13.details
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Rules of engagement: perspectives on stakeholder engagement for genomic biobanking research in South Africa.Ciara Staunton, Paulina Tindana, Melany Hendricks & Keymanthri Moodley - 2018 - BMC Medical Ethics 19 (1):1-10.details
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Community Engagement in Precision Medicine Research: Organizational Practices and Their Impacts for Equity.Janet K. Shim, Nicole Foti, Emily Vasquez, Stephanie M. Fullerton, Michael Bentz, Melanie Jeske & Sandra Soo-Jin Lee - 2023 - AJOB Empirical Bioethics 14 (4):185-196.details
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Recruitment of Yoruba families from Nigeria for genetic research: experience from a multisite keloid study.Peter B. Olaitan, Victoria Odesina, Samuel Ademola, Solomon O. Fadiora, Odunayo M. Oluwatosin & Ernst J. Reichenberger - 2014 - BMC Medical Ethics 15 (1):65.details
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Community engagement in genomic research: Proposing a strategic model for effective participation of indigenous communities.Olubunmi Ogunrin, Mark Gabbay, Kerry Woolfall, Lucy Frith & ogu - 2021 - Developing World Bioethics 22 (4):189-202.details
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To What did They Consent? Understanding Consent Among Low Literacy Participants in a Microbicide Feasibility Study in Mazabuka, Zambia.Esther Munalula-Nkandu, Paul Ndebele, Seter Siziya & J. C. Munthali - 2014 - Developing World Bioethics 15 (3):248-256.details
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Legitimacy, Trust and Stakeholder Engagement: Biobanking in South Africa.Keymanthri Moodley - 2017 - Asian Bioethics Review 9 (4):325-334.details
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Benefits and payments for research participants: Experiences and views from a research centre on the Kenyan coast. [REVIEW]Sassy Molyneux, Stephen Mulupi, Lairumbi Mbaabu & Vicki Marsh - 2012 - BMC Medical Ethics 13 (1):13-.details
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Working with Concepts: The Role of Community in International Collaborative Biomedical Research.V. M. Marsh, D. K. Kamuya, M. J. Parker & C. S. Molyneux - 2011 - Public Health Ethics 4 (1):26-39.details
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Voluntary participation and comprehension of informed consent in a genetic epidemiological study of breast cancer in Nigeria.Patricia A. Marshall, Clement A. Adebamowo, Adebowale A. Adeyemo, Temidayo O. Ogundiran, Teri Strenski, Jie Zhou & Charles N. Rotimi - 2014 - BMC Medical Ethics 15 (1):38.details
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Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya. [REVIEW]Vicki Marsh, Francis Kombe, Raymond Fitzpatrick, Thomas N. Williams, Michael Parker & Sassy Molyneux - 2013 - BMC Medical Ethics 14 (1):41.details
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Sharing the Knowledge: Sharing Aggregate Genomic Findings with Research Participants in Developing Countries.Angeliki Kerasidou - 2014 - Developing World Bioethics 15 (3):267-274.details
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Lay persons’ perception of the requirements for research in emergency obstetric and newborn care.Dan Kabonge Kaye - 2021 - BMC Medical Ethics 22 (1):1-13.details
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“When they see us, it’s like they have seen the benefits!”: experiences of study benefits negotiations in community-based studies on the Kenyan Coast.Dorcas M. Kamuya, Vicki Marsh, Patricia Njuguna, Patrick Munywoki, Michael Parker & Sassy Molyneux - 2014 - BMC Medical Ethics 15 (1):90.details
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Engaging Communities to Strengthen Research Ethics in Low‐Income Settings: Selection and Perceptions of Members of a Network of Representatives in Coastal K enya.Dorcas M. Kamuya, Vicki Marsh, Francis K. Kombe, P. Wenzel Geissler & Sassy C. Molyneux - 2013 - Developing World Bioethics 13 (1):10-20.details
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Evolving Friendships and Shifting Ethical Dilemmas: Fieldworkers’ Experiences in a Short Term Community Based Study in K enya.Dorcas M. Kamuya, Sally J. Theobald, Patrick K. Munywoki, Dorothy Koech, Wenzel P. Geissler & Sassy C. Molyneux - 2013 - Developing World Bioethics 13 (1):1-9.details
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Ethical issues in human genomics research in developing countries.Jantina de Vries, Susan J. Bull, Ogobara Doumbo, Muntaser Ibrahim, Odile Mercereau-Puijalon, Dominic Kwiatkowski & Michael Parker - 2011 - BMC Medical Ethics 12 (1):5.details
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Exploring researchers’ experiences of working with a researcher-driven, population-specific community advisory board in a South African schizophrenia genomics study.Megan M. Campbell, Ezra Susser, Jantina de Vries, Adam Baldinger, Goodman Sibeko, Michael M. Mndini, Sibonile G. Mqulwana, Odwa A. Ntola, Raj S. Ramesar & Dan J. Stein - 2015 - BMC Medical Ethics 16 (1):1-9.details
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CQ Sources/Bibliography.Bette Anton - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (3):466-467.details
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The value of communities and their consent: A communitarian justification of community consent in medical research.Pepijn Al - 2020 - Bioethics 35 (3):255-261.details
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A mixed-methods study on perceptions towards use of Rapid Ethical Assessment to improve informed consent processes for health research in a low-income setting.Adamu Addissie, Gail Davey, Melanie J. Newport, Thomas Addissie, Hayley MacGregor, Yeweyenhareg Feleke & Bobbie Farsides - 2014 - BMC Medical Ethics 15 (1):35.details
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