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  1. Biobank research and the right to privacy.Lars Øystein Ursin - 2008 - Theoretical Medicine and Bioethics 29 (4):267-285.
    What is privacy? What does privacy mean in relation to biobanking, in what way do the participants have an interest in privacy, (why) is there a right to privacy, and how should the privacy issue be regulated when it comes to biobank research? A relational view of privacy is argued for in this article, which takes as its basis a general discussion of several concepts of privacy and attempts at grounding privacy rights. In promoting and protecting the rights that participants (...)
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  • Consistency of What? Appropriately Contextualizing Ethical Analysis of Non-Invasive Prenatal Testing.Ainsley J. Newson, Zuzana Deans, Lisa Dive & Isabella Catherine Holmes - 2023 - American Journal of Bioethics 23 (3):56-58.
    It is unarguable that the implementation and use of noninvasive prenatal testing (NIPT) should be critical and appropriate. After all, decisions that influence when and how to have children have ut...
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  • Coming to Grips with Genetic Exceptionalism: Roots and Reach of an Explanatory Model. [REVIEW]Ilhan Ilkilic - 2009 - Medicine Studies 1 (2):131-142.
    Is genetic information different from other types of medical information and is therefore a special treatment required because of its special features? This question has been discussed since the mid-1990s under the label of genetic exceptionalism. This article discusses the essential arguments of the genetic exceptionalism discourse and analyzes their ethical reach. The primary question of this paper is whether the arguments of the current debate, with its predominantly scientific focus, are capable of solving the ethical questions raised by genetic (...)
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