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  1. How Ought Decisions That Weigh on Life and Death Be Justly Informed and Governed to Benefit More than the Privileged Few with Access to a Trusted Clinician?Barbara A. Koenig & Julia E. H. Brown - 2022 - American Journal of Bioethics 22 (2):1-3.
    The two target articles in this issue bring into focus the struggle for governance over biomedical interventions that may offer some families more agency—the capacity to act—in the context of many...
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  • Is It Just for a Screening Program to Give People All the Information They Want?Lisa Dive, Isabella Holmes & Ainsley J. Newson - 2023 - American Journal of Bioethics 23 (7):34-42.
    Genomic screening at population scale generates many ethical considerations. One is the normative role that people’s preferences should play in determining access to genomic information in screening contexts, particularly information that falls beyond the scope of screening. We expect both that people will express a preference to receive such results and that there will be interest from the professional community in providing them. In this paper, we consider this issue in relation to the just and equitable design of population screening (...)
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  • Access to Expanded Prenatal Genetic Testing: Response to Open Peer Commentaries.Michelle J. Bayefsky & Benjamin E. Berkman - 2022 - American Journal of Bioethics 22 (5):1-3.
    We would like to thank the authors of the excellent Open Peer Commentaries on our target article, “Implementing Expanded Prenatal Genetic Testing: Should Parents Have Access to Any and All Fetal Ge...
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